National Brain Tumor Society
 
 
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Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Research and Public Policy and Advocacy programs, as well as the latest research and community news, and information on NBTS regional events.

March 2012

Bridge Project LogoSupporting "Bridge Project" to Attack Most Lethal Forms of Cancer

National Brain Tumor Society (NBTS) is excited to be involved with the Bridge Project, an unprecedented clinical research collaboration between the David H. Koch Institute for Integrative Cancer Research at MIT and Dana-Farber/Harvard Cancer Center (DF/HCC). The Bridge Project recently awarded its first grants to four impressive interdisciplinary teams, including one that will focus on Glioblastoma Multiforme.
 Learn More.

Lynda Chin at the NBTS Systems Biology SymposiumLynda Chin, MD, Provides TCGA Update at NBTS Systems Biology Symposium

Dr. Lynda Chin, Chair of MD Anderson Cancer Center's Department of
Genomic Medicine, is the latest featured presenter in the NBTS video series, Stepping Up to the Complexity Challenge. Dr. Chin discusses the challenges in translating genomic findings into medicine and shares her insights on the status of The Cancer Genome Atlas (TCGA) GBM Project.

Have a question about TCGA? Want to share your opinion? Visit the
NBTS Scientific Insight Discussion Forum.

Got 60 Seconds to Speak Up for New Therapies and Access to Health Care?

It only takes about 60 seconds to send a letter to Congress urging their support for the brain tumor community. Right now, Congress is actively putting together its budget plan for FY 2013. Look for upcoming advocacy action alerts so you can ask your Congresspersons to increase brain tumor related research funding. Learn what’s happening on other key policy issues including the Affordable Care Act, and the FDA’s approach to new therapies. Sign up to get the alerts and updates here. And if you have more than 60 seconds, join us on May 7 and 8 in Washington, DC. for Head to the Hill – our advocacy day on Capitol Hill.

Charity Navigtor Four StarNBTS Earns Four-Star Rating from Charity Navigator

Charity Navigator, America’s largest and most utilized independent evaluator of charities, has awarded National Brain Tumor Society a four-star rating. As Ken Berger, the President and CEO of Charity Navigator said in a letter to NBTS, “Receiving four out of a possible four stars indicates that your organization adheres to good governance and other best practices that minimize the chance of unethical activities and consistently executes its mission in a fiscally responsible way. Approximately a quarter of the charities we evaluate have received our highest rating, indicating that National Brain Tumor Society outperforms most other charities in America. This “exceptional” designation from Charity Navigator differentiates National Brain Tumor Society from its peers and demonstrates to the public it is worthy of their trust.”

Community Events Update
Upcoming Community Event
Fighting for the Cure April 21, 2012

The first-ever Fighting For The Cure Walk will take place on Saturday, April 21. This year, the Drake High School student-run organization aims to increase awareness and raise money for medical research to improve treatments for brain tumors through NBTS.

Help us Tee Off on Brain Tumors
We are currently looking for people to join the planning committee of our San Diego Golf Tournament. For more information about the golf tournament, Contact Shkeya Brittle at sbrittle@braintumor.org or 617-393-2835.

Karen Armantani Get Your Head in the Game SpokespersonA New Head is in the Game

Taking action against brain tumors is a life-passion for Karen Armantani, the newest Get Your Head in the Game Spokesperson for NBTS. After being diagnosed with a primary atypical meningioma in 2005, she has been tirelessly working as a patient advocate and brain tumor warrior. The recipient of a 2011 NBTS Community Leadership Award, Karen has been a dedicated member of the Race for Hope - Philadelphia planning committee and organizes the event's Survivor Tent. NBTS is proud to have her involved and looks forward to all she will do to help others get their heads in the game. Read more about Karen.

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Save the date for our 2012 events!

Wilmington, Del. - April 28
Brain Tumor Walk

San Francisco, Calif. - May 5
Brain Tumor Walk

Washington, D.C. - May 6
Race for Hope - DC

Boston, Mass. - May 20
Brain Tumor Ride

Saratoga Springs, N.Y.- May 20
Team Billy Ride & Walk for Research

Denver, Colo. - June 2
Denver Brain Tumor Walk

New York, N.Y. - June 16
New York Brain Tumor Walk

Way to Go Phoenix!
Participants in the first NBTS event of 2012 have set a high standard for other event participants to beat. Over 1500 people took part in the Phoenix Brain Tumor Walk on March 18, raising more than $150,000 so far.

Items of Interest
New Advocacy Tool Available
Wondering how you can fight brain tumors in one minute? Or are you curious about how to take your advocacy efforts even further? Check out our new self-guided webinar to find out how you can be a brain tumor advocate, go a step further with your advocacy, and enlist your friends and family to join the fight!

NBTS Closes in on 10,000
Facebook Likes

Are you one of the more than 9,000 people who have "liked" the NBTS Facebook page? If you have, you know that it is a great place to find out what is going on and connect with others in the brain tumor community. If you haven't already, "like" us today and help us reach 10,000 before Head to the Hill, the brain tumor advocacy day in Washington D.C. on May 8.

In the Brain Tumor Community
The Brain Science Foundation will host events that will bring together patients, caregivers, family, and friends with leading clinicians, researchers, nurses and other experts to discuss the latest in the diagnosis and treatment of two types of brain tumors. Pituitary Day will take place on Saturday, March 24 and Meningioma Awareness Day will take place on Saturday, April 28.

Recent Articles

Oncolytic Virus Extends Survival In Medulloblastoma Model

8 Biotech Companies Rethinking Immunotherapy for Brain Tumors

NIH Awards $3.3 Million Grant To Research Barrier-Breaking Brain Cancer Treatment

More research news

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National Brain Tumor Society is a nonprofit organization committed to finding a cure for brain tumors. NBTS aggressively drives strategic research, advocates for public policies that meet the needs of the brain tumor community, and provides patient information.
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