National Brain Tumor Society
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September 2009
Many Voices. United Purpose.
Inspirational Evening at NBTS Annual Meeting
Thanks to all those in the brain tumor community who were able to join us in Washington, DC last week. Highlights included:
  • Video debut of the compelling story of NBTS and our committment to the community through our three mission areas of patient services, research, and advocacy.  View
  • Over $3.5 million in research grants were awarded for promising projects.  More
  • Dr. Anna Barker, Deputy Director of National Cancer Institute and Dr. Kenneth Kinzler, Professor of Oncology at The Johns Hopkins Kimmel Cancer Center accepted the first Founders Award for Research Excellence for the advancement in genomic analysis of gliomas.  More
  • Community Leader Awards were presented to individuals who are inspirational examples of dedication and support.   More
  • A moving story, "A Father's Voice," shared by Eric Wenger about his 9-year old daughter Kayla, currently battling a brain tumor diagnosis.  More
Research
Research Workshop: "Driving Research to Therapies"
NBTS hosted a professional workshop prior to our Annual Meeting last week. Titled "Defining the Role of the Non-Profit Organization: Driving Research to Therapies," the workshop underscored the complexity of the multiple phases of the Research & Development pipeline, including the range of expertise and experience required and efforts necessary to overcome hurdles in bringing promising research to effective and approved therapies. We were joined by prestigious panelists from industry, governemnt, and academia, providing informative and lively discussion.
 
New NBTS Grant Structure Put into Action
NBTS has now funded over $3.5 milllion in research in 2009 through our Standard, Advanced, and Innovation Research Grants, including a focus on pediatric brain tumor research.  More
Patients, Family & Friends
The New NBTS Essential Guide to Brain Tumors is Here!
The latest edition of this easy-to-read and comprehensive booklet about brain tumors contains the most current and valuable information for newly diagnosed patients, long-term survivors, family members, and health professionals. Get your free copy online or call the Patient Services Line at 800.934.2873.  More
 
Brain Tumor Broadcast Features NBTS Experts
This special brain tumor segment on the Wellness Community's award-winning internet radio program, "Frankly Speaking about Cancer," focused on helping patients become informed and live well with brain cancer. Our own Mary Lovely, RN, PhD, Medical Information Specialist and Harriet Patterson, MPH, Director of Patient Services were featured speakers.  More
Events
Check out these creative ways people are uniting to fight brain tumors:
  • Barry Glassman's Chef Night recently held in DC  More
  • 3rd Annual Kristin Corrigan Joggin for the Noggin 5K Run/Walk, October 17  More
  • 1st Annual Neal B. Prather Memorial Golf Tournament, October 3  More
  • Matt Bender "Wally World Classic" Golf Tournament. Features a silent auction, October 10  More
Start your own fundraiser today!  More
 
You can also inspire hope and take action by registering for our upcoming fall events (see the sidebar for dates and details).
Ways to Help
Thanks for Participating in our Giving Challenge
We wrapped up our exciting donor matching giving challenge at our Annual Meeting last week. Many thanks to everyone who participated. Our generous, anonymous donor matched over $250,000 in donations!
 
How to Help
There are many ways you can unite with NBTS in the fight against brain tumors. Your contributions help us to advance the most promising research, and provide critical information, support, and services to patients and families coping with a brain tumor diagnosis. Please give today!
 
However you choose to support NBTS, thank you. Together we are making a difference.


News and Events
 
Online Caregiver Workshop Webinar Series
Are you interested in connecting with other caregivers and participating in an online educational series?  Email for more information
 
Exciting News in DC
 
NBTS Fall Events:
Register, donate, or volunteer today!

Southern CA - Oct. 17
Brain Tumor Walk  More
 
New York City - Oct. 18
Have A Chance Walk  More
 
Phoenix, AZ - Oct. 24
Brain Tumor Walk  More
 
Philadelphia, PA - Nov. 1
Race for Hope  More
 
Dallas-Ft. Worth - Nov. 7
Brain Tumor Walk  More
 
Join Our Peer Support Network
Volunteer or be matched with a peer. We bring together patients, caregivers, and friends to connect with others coping with a brain tumor diagnosis.  More
 
Ependymoma Outcomes (EO) Project
CERN survey for adults with an ependymoma diagnosis looking for participants. The EO Project is an online questionnaire designed to gather information to better understand outcomes for adult patients with ependymoma. Participants will be anonymous and will provide information on their current health status and treatment history.  More
 
CLRC Teleconference & Webinar Series
The Cancer Legal Resource Center offers a teleconference and webinar series on "Cancer and the Law", "Navigating Managed Care", and other topics.  More
 
 
Research in the News:
 
Gene Vital to Brain's Stem Cells Implicated in Deadly Brain Cancer  More
 
Gliomas Exploit Immune Cells of the Brain for Rapid Expansion  More
 
Why Don't Brain Tumors Respond to Medication  More
 
National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.
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