| |
|
2010 Annual Meeting |
On September 21, the
brain tumor community came together at NBTS's 2010
Annual Meeting, held this year at the Mission Bay
Conference Center at UCSF in San Francisco. More than 200 people
celebrated accomplishments, honored dedicated members of the
community, and learned about the latest research being done to
eradicate this terrible disease. Read more highlights from this inspirational
evening.
At the
meeting, NBTS announced the new Executive Committee of the
Board of Directors for the coming year. Jeff Kolodin will serve as Chair, Cord Scholbohm, DMD as Vice-Chair, Ken
Grey will continue in the role of Treasurer, and Francesca Venezia
Dunbar takes over as Secretary. Additionally, Scott Memmott, Esq.,
has joined the Board as a new member. We are extremely grateful for
the leadership that Allison Jones Thomson has provided for the
past two years, and thank her for her past work as Board
Chair.
Executive Director N. Paul TonThat, Outgoing Board Chair Allison Jones Thomson, and Current Board Chair Jeff Kolodin
|
|
| Research |
Neurological surgeon is encouraged by vaccine trial to battle brain
tumors
Andrew T.
Parsa, MD, PhD, of the University of California, San Francisco,
whose research has been supported by NBTS, is encouraged by early
and preliminary results from his study to evaluate overall survival
in patients taking part in a project that offers a "vaccine" to
battle brain tumors. Read more on the NBTS website or watch a video from CNN about Dr. Parsa's
research.
New clinical phase III-study for anaplastic astrocytoma starts in
the US
Antisense
Pharma recently announced the SAPPHIRE Phase III study for patients
diagnosed with refractory or recurrent anaplastic astrocytoma only.
The study will assess the efficacy, safety, and effect on quality
of life of trabedersen (AP 12009) in these patients, compared with
standard chemotherapies. Read more.
|
|
Patients, Family & Friends |
|
Don't miss the Living with a Brain Tumor Conference!
Join the
National Brain Tumor Society on October 8-9, 2010, in Dallas,
Texas for an exciting conference created for patients, survivors,
and their families. The day will feature presentations from
multidisciplinary health professionals on a wide range of topics,
and will provide opportunities for patients and families to receive
support and connect with others. Visit our website to learn more or to
register.
Meningioma Awareness Day in Boston, Mass.
The Brain
Science Foundation, in collaboration with the Hahnemann Hospital
Foundation, Brigham & Women's Hospital, and the Daniel E.
Ponton Fund for the Neurosciences, is pleased to present
Meningioma Awareness Day 2010: Empowerment Starts
Here on Saturday, October 2. Harriet Patterson,
Director of Patient Services, will be speaking at a session titled
"The Impact of Healthcare Reform on Brain Tumor and Patient
Care." Learn more.
Update
on the Patient Protection and Affordable Care Act
September 23, 2010,
marks six months since the Congress enacted and President Obama
signed into law the Patient Protection and Affordable Care
Act. The law will not be fully implemented until 2014, but
important provisions of the Affordable Care Act are effective
beginning September 23, 2010, including some that offer
important protections to those with brain tumors. Read more.
|
|
Events |
Fall Event Season Kicks Off!
The NBTS 2010
fall event season got underway in the end of August. Thanks to
everyone involved! Some highlights include:
Even with
three fall events completed, we have lots of exciting events coming
up, including the inaugural Boston Brain Tumor Walk on Oct. 2, the
Southern California
Brain Tumor Walk on Oct. 16, and
the Phoenix Brain Tumor Walk on Oct. 23. And
that's just October!
|
|
News and Events
Join us in the fight against brain tumors.
New! Boston, Mass. - Oct. 2
Brain Tumor Walk
Southern Calif. - Oct. 16
Brain Tumor
Walk
Phoenix, Ariz. - Oct. 23
Brain Tumor Walk
Dallas-Ft. Worth, Texas - Nov. 6
Brain Tumor Walk
Philadelphia, Pa. - Nov. 7
Race for Hope
NBTS out and about
Some of the
upcoming events in which NBTS is participating:
Society
for Integrative Oncology Conference
November 11-13, 2010
New York, New York
Harriet Patterson, Director of Patient Services, will speak on
patient advocacy and integrative oncology
Society for
Neuro-Oncology Meeting
November 18-21, 2010
Montreal, Canada
NBTS is a Platinum Sponsor for this year's event!
Mary Lovely, RN, PhD, Medical Information Specialist, will
chair the Quality of Life Education Day
6th Annual Tulips Against Tumors Tribute
Tulips are a beautiful symbol of hope and faith in a brighter future. The Kelly Heinz-Grundner Foundation (KHG) celebrates this triumph of hope with the Tulips Against Tumors program. With the merger between KHG and the National Brain Tumor Society (NBTS), Tulips Against Tumors will reach gardens all across the country! Your purchase helps support NBTS research, patient services, advocacy, and awareness programs. Order your tulips today!
President Proclaims September as National Childhood Cancer
Awareness Month
On
September 10, President Obama proclaimed September as National
Childhood Cancer Awareness Month, and encouraged Americans to join
him in "recognizing and reaffirming our commitment to fighting
childhood cancer." Read the full proclamation.
Telford receives Athlete of the Month honor
Congratulations to BethAnn
Telford, who has raised hundreds of thousands of dolllars for NBTS,
as she was recently named the USA Triathalon Rudy Project
Amateur Multisport Athlete of the Month. Read her entire nomination.
"Jog for Jackie" raises over $7,000 for NBTS
"Jog for
Jackie" was held on Saturday, June 26, in honor of the late
Jacqueline Hoobler Ruestman who sadly passed away on June 17,
2008, after battling a brain tumor for five years. Although the
race took place in the small town of El Paso, Illinois, the
generousity of the residents living there was tremendous. "Jog for
Jackie" raised over $7,000 for NBTS.
|
