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Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Research and Public Policy and Advocacy programs, as well as the latest research and community news, and information on NBTS regional events.

February 2012

National Brain Tumor Society's Head to the Hill

Advocating for Patients' Essential Health Care Services
National Brain Tumor Society is advocating for brain tumor patients’ essential health care services to be adequately covered as the health care reform law continues to be implemented. Read our letter to the Honorable Kathleen Sebelius, Secretary of Health and Human Services. Also, learn more about the issues we’re advocating for with Congress and the Administration. Check out the latest public policy update and mark your calendars for the "Head to the Hill" brain tumor advocacy event in Washington, D.C. May 7 and 8.

Counterfeit Drug Labeled as Avastin
Genentech has announced that a counterfeit product that is labeled as Avastin (bevacizumab) has been distributed in the United States. For complete details, including how to tell if a vial is authentic, and what to do if you suspect that you have come in contact with a counterfeit product, please see the Genentech statement.

Systems Biology Symposium videos Check out the NBTS Systems Biology Symposium Videos
Watch Dr. Michael Yaffe's insightful presentation explaining why brain tumor research demands a systems biology approach and stay tuned each month for future installments with other leaders in the field. Hear the call to action from leaders in government, science, and advocacy during the panel discussion. Engage the community by posting comments on the Scientific Insights message board.

PBTC Selects Stanford University/Lucile Packard Children's Hospital
Congratulations to NBTS Board Member, Dr. Paul Fisher from Stanford University/Lucile Packard Children's Hospital on the hospital's selection to the Pediatric Brain Tumor Consortium (PBTC). The PBTC includes a select group of elite centers that are responsible for the diagnosis and treatment of the majority of children with primary brain tumors.

Findings from Two NBTS Funded Research Studies
Two research studies funded by NBTS grants have recently been published:

Dr. Suzanne Baker from St. Jude Children's Research Hospital published exciting results in the journal Nature Genetics on research that has linked a gene to diffuse intrinsic pontine glioma.

Tocagen published positive findings in the journal Neuro-Oncology on using the drugs Toca 511 followed by 5-FC to treat glioblastoma in mouse models.

Community Events Update
Upcoming Community Event
Students Supporting Brain Tumor Research
February 25, 2012

Join Students Supporting Brain Tumor Research in Scottsdale, Ariz. on February 25 for their 11th annual Walk-A-Thon. Walk anywhere from 1/4 mile to 5 miles or more. The event is family-friendly and easy for people of all ages in all physical conditions. The registration fee includes a SSBTR T-shirt, silent auction, snacks, and entertainment. Be on the look out for NBTS frisbees! Learn more or register today.

Plan Your Own Community Event!
Create your own event to support impactful progress against this disease. We can help you get started. You will have access to helpful NBTS templates, your own personal website, NBTS materials and so much more.

Need ideas? You can organize a:
Golf Tournament
Wine Tasting
Bowling Tournament
Dinner Party
Bike Ride
Fashion Show
Anything You Want To Do!

Contact Shkeya Brittle, Director of Community Events at or 617-393-2835 for more information.

Floretta ConnallyA Story Corner Update
Floretta Connally's Story Corner contribution was an article called 'Blessed with a Second Chance' that appeared in the Pioneer Press in December of 1998. She recently sent an update. "I am doing very well since my surgery. It has been a challenge. I decided to go back to college to see how well my brain was functioning. I graduated with honors and was on the dean's list and the president's list. Yes, I was blessed with a second chance."

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Save the date for our 2012 events!

Phoenix, Ariz. - March 18
Brain Tumor Walk

Wilmington, Del. - April 28
Brain Tumor Walk

San Francisco, Calif. - May 5
Brain Tumor Walk

Washington, D.C. - May 6
Race for Hope - DC

Boston, Mass. - May 20
Brain Tumor Ride

Saratoga Springs, N.Y.- May 20
Team Billy Ride & Walk for Research

Denver, Colo. - June 2
Denver Brain Tumor Walk

New York, N.Y. - June 16
New York Brain Tumor Walk

Items of Interest
Have you been reading the NBTS "Headquarters" Blog?

Here are a few highlights from this past month:

Key discovery in pediatric brain tumors
NBTS funded research on the deadly brain tumor diffuse intrinsic pontine glioma shows ... Read more.

‘Unequivocal Evidence’ on Oligodendroglioma
A combination of radiation and chemotherapy improves survival time ... Read more.

State of the Union
The President's annual address focused on the economy but members of the brain tumor community... Read more.

In the Brain Tumor Community

The CERN Foundation will commemorate Ependymoma Awareness Day (EAD) on April 19, 2012. You can learn more on the CERN Foundation website, which includes an Awareness Kit.

Recent Articles

Therapy can add years to certain brain tumor patients' lives

Diagnostic brain tumor test could revolutionize care of patients with low-grade gliomas

Del Mar Pharmaceuticals to present new pre-clinical data related to the mechanism of VAL-083 at the AACR Annual Meeting in April 2012

More research news

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National Brain Tumor Society is a nonprofit organization committed to finding a cure for brain tumors. NBTS aggressively drives strategic research, advocates for public policies that meet the needs of the brain tumor community, and provides patient information.
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