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Synapse eNews is published by NBTS for all members of the brain tumor community. It includes updates on our research, public policy and advocacy programs, as well as research and community news, and our regional events.

June 2012

Strengthening Research, Advancing Therapy, and Improving Health Care

The brain tumor community is hard at work on several policy issues. As the Fiscal Year 2013 budget is being developed, we’re working to ensure that the National Institutes of Health (NIH), the largest U.S. funder of brain tumor research, receives the funding it needs. In addition, we're following one of the only must-pass pieces of legislation for this year, the Prescription Drug User Fee Act (PDUFA), with provisions that will give the Food and Drug Administration (FDA) the ability to devote more resources to scientifically evaluating treatments aimed at life-threatening diseases. Finally, we expect a decision on the constitutionality of the Affordable Care Act any day now. When the announcement is made, we will let you know what it means for the brain tumor community. To learn more, read our latest Public Policy and Advocacy Update. While you’re there, join us by signing up to be an advocate!

Advocate-BethAnn TelfordAdvocate of the Month

To honor the dedication of our volunteer advocates, we will select an advocate of the month and showcase their dedication to fighting brain tumors and to this community. This month, we honor BethAnn Telford, survivor, advocate and Race for Hope Team BT team captain. BethAnn takes her leadership further by advocating for and spreading the word about policy issues that are critical to the brain tumor community. Hear from BethAnn as she shares her experiences as an advocate in this video.

What is BethAnn tackling next? This year she hopes to win a spot in the Kona Ironman Triathlon. To win, BethAnn needs you to vote for her video! To vote visit July 4-18, or click here to receive an alert from us when it's time to vote.

A Successful Spring Event Season

NY Walk 2012This past weekend, our spring event season came to a close with the New York Brain Tumor Walk, where 1,800 participants came together to raise over $446,150. And earlier in the month the Denver Brain Tumor Walk raised over $174,000.

We would like to send a heartfelt thank you to all of the participants and supporters of our spring Walks, Rides and Races. Funds raised through our events help drive strategic research to find a cure for brain tumors, and ensure the critical needs of the brain tumor community are met through public policy and patient information.

We would like to express a special thank you to our event title sponsors:

New York Brain Tumor Walk
YK Foundation

Race for Hope-DC
Cassidy Turley

And, to our top event sponsors:

Bay Area Brain Tumor Walk

Delaware Brain Tumor Walk
Penn & Barclay's

Phoenix Brain Tumor Walk

Race for Hope-DC
Arnold & Porter, LLP
The Case Foundation
Children's National Medical Center
The Conley Family & HFF
Morgan Lewis

Complete lists of all our great event sponsors can be found on each event website. Visit

Dr. Thomas DeisboeckNow Available: Dr. Thomas Deisboeck on Mathematical Modeling of Brain Tumor Biology

The final video from our Systems Biology Research Symposium video series highlights the mathematical modeling work of Dr. Thomas S. Deisboeck, Director of Complex Biosystems Modeling Laboratory at Harvard-MIT.

Dr. Deisboeck details his computational work conducted over the last ten years, shares the potential of these technical approaches to systems biology, and highlights how they support early stage scientific discoveries and predictive personalized medicine. View Dr. Deisboeck's video or our entire video series here.

Community Events Update

Catch The Brain Wave 2012
Rick Franzo's Catch The Brain Wave event, a day of family fun and brain tumor awareness, was a success again, raising $3,100 for brain tumor research. A survivor himself, Rick is passionate about finding a cure.

Your Event Could Be Next
Are you interested in having your own community event? Contact us at We are ready to help you get started!

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Upcoming Events

Portland, OR - 8/18
Portland Brain Tumor Walk

Orange County, CA - 9/8
Orange County Brain Tumor Walk

Dallas-Ft. Worth, TX - 9/29
Dallas-Ft. Worth Brain Tumor Walk

Boston, MA - 10/13
Boston Brain Tumor Walk

See a full listing of 2012 events

Spring Appeal 2012

A Cure Can't Wait

Please stand with the National Brain Tumor Society as we fight for a future with a cure. Your donation will save more precious lives like Connor’s.

Conferences & Meetings We're Attending:

Brain Tumor Biotech Summit
New York, NY

Turning the Ride Against Cancer Conference
Washington, DC

19th International Conference on Brain Tumor Research & Therapy
Niagara Falls, NY

15th International Symposium on Pediatric Neuro-oncology
Toronto, CA

Brain Tumor Epidemiology Consortium
Montpellier, FR

Translational Research Summit
Washington, DC

Items of Interest

Bloomberg's recent article, Novel Drugs Seek Cure for Cancer That Killed Ted Kennedy, featured our own Executive Director, Paul TonThat, and industry leaders including Tocagen, recent recipient of NBTS's Innovation Research Grant.

This year's Turning the Tide Against Cancer Through Sustained Medical Innovation conference was held on June 12 in Washington, D.C., hosted by the Personalized Medicine Coalition, American Association of Cancer Research and Feinstein Kean Healthcare. Click here for a full recap of the conference from NBTS staff.

Recent Articles

Scientists release childhood cancer genome data that could key treatments

Aggressive Brain Surgery Suggested for IDH1-Mutant Astrocytomas: Presented at ASCO

Novel Way To Treat Drug-Resistant Brain Tumor Cells

More research news

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National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
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