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N. Paul TonThat
N. Paul TonThat,
Executive Director
Dear Community,

The warm days of summer provide an opportunity for us (all) to take a breath and reflect on our collective work and achievements. This short pause also allows me the privilege of sharing our vision and plans for the coming months.

With over 688,000 people in the U.S. living with a primary brain tumor and only four (4) FDA-approved treatments in the past 20 years, our commitment to this community is unchanged, and we share in your passion to find a cure. We remain focused on supporting and funding the most promising areas of research and those poised to offer the most compelling results. In addition, we continue to advocate for the public policies and essential health care services, which will offer an enhanced quality of life for those living with a brain tumor today, and anyone who will be diagnosed tomorrow. We believe these are the areas where we can deliver the greatest impact to brain tumor patients, survivors, and their families.

Greene Baskin Family
 Brock Greene and Pam Baskin are helping
fund transformational research for
Oligodendrogliomas; both of their sons,
Zach, 22 and Spencer, 19 were
diagnosed with this rare brain tumor.

Head to the hill group
Participants in our Head to the Hill 2012 advocacy
day told their stories and put real faces to the issues
  • To fuel a better understanding of the complexities of brain tumors, we are in the midst of our 2nd year with the Mary Catherine Calisto Systems Biology Initiative, a $5 million, multiyear research program.
  • To better address the deadliest of brain cancers, we see great promise in creating a team science framework, which aims to promote research collaboration among organizations for a single (and focused) research goal.
  • Through our Innovation Research Initiative, these grants focus on predicting genomic and genetic aspects of brain tumor development, as well as the impact and efficacy of new combination therapy approaches.
  • With over 9,000 advocates across the U.S., our annual advocacy days are an integral piece of our community mobilizing efforts. This past May, Head to the Hill provided a forum for the brain tumor community to share their stories with 95 congressional offices - proving that we are united and fighting for the needs of this community.

As we continue to focus on driving vital research forward and advocating for the public policy issues that matter most, we will begin to engage with all of you in new and exciting ways, and continue to share all of the opportunities for us to work together. We are honored to be part of this community, and we thank you for your never-ending support and dedication. Together, we can inspire hope and take action to create a world in which a cure for brain tumors exists.

Sincere regards,

N. Paul TonThat
Executive Director,
National Brain Tumor Society

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
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