September is Childhood Cancer Awareness Month
BethAnn Telford, a brain tumor survivor, is motivated by the hope and promise of the National Brain Tumor Society's pediatric initiatives for young patients like Anya.
Today, brain tumors are the second leading cause of
cancer-related deaths in children under the age of 20, and those diagnosed (with
a brain tumor) have few treatment options available. In addition, current
treatment options pose risks to a child’s developing brain, and may cause
negative long-term effects. National Brain Tumor Society is committed to the
vast needs of the brain tumor community, and funds research at leading
institutions such as Children’s National Medical Center (Washington, DC) and Memorial
Sloan-Kettering Cancer Center (New York, NY) to drive pediatric research, and
expedite the discovery and availability of new treatment options. Learn more...
The Rachel Molly Markoff Foundation was named a Chair of
Research for our Developmental Neurobiology Initiative; integral to our
Pediatric Research Program. The Foundation recently co-hosted Art in
Giving's Gallery Night to raise awareness of brain tumors.
One recent update on new treatment options is the Food & Drug
Administration's (FDA) recent approval of AFINITOR® Disperz (everolimus tablets
for oral suspension) for use in pediatric brain tumor patients with
subependymal giant cell astrocytoma (SEGA), a brain tumor seen with a genetic
condition called tuberous sclerosis (TS). This drug was previously approved for adult
patients, and its new (pediatric) approval provides a safe and effective
treatment option for children as young as one year old. Interested to learn more about this recent
approval? View the full article.
On the research front, our latest research grant
opportunity addresses Oligodendrogliomas, the second most common glioma among
all brain tumor patients, including children and young adults. This initiative
is just one of the Innovation Research Grants
we offer, to support the unique needs of the brain tumor community. Requests for applications (RFA)
begin on October 1, 2012.
Advocate of the Month Pati Urias with her son Colin.
In communities across the United States, we are spreading
awareness, educating policymakers, and raising critical resources to support National
Brain Tumor Society’s mission to find a cure.
Our growing base of advocates play a key role in educating their
communities and elected officials about the needs of the brain tumor
community. This month, our advocate of the month is Pati Urias,
an Arizona resident who joined us to fight brain tumors in honor of her son,
Colin. A strong voice for our community, she made sure each Arizona congressional delegate
was aware of the critical issues facing brain tumor patients. As chair of our Phoenix Brain Tumor Walk, a
mentor to other advocates, and a support system to parents of children with brain
tumors, she is a leader and an inspiration to all who know her. Thank you Pati, for all that you do! View the latest Public Policy & Advocacy Update.
Community Events Update
First Annual Race for the Brain Event
Westerville, OH - 10/28
Started by Angi Miller, a surgical assistant specializing in neurosurgery, Race for the Brain is an event honoring the many patients Angi has met that are seeking treatments for brain tumors and the many personal acquaintances she has watched bravely battle brain tumors of various types.
Find an upcoming event or email firstname.lastname@example.org to start your own community event. Get involved today!
Tulips Against Tumors
Take part in the Tulips Against Tumors program to honor all those who have been affected by a brain tumor and help raise brain tumor awareness across the United States. Order your tulips today!
Dallas-Ft. Worth, TX - 9/29
Dallas-Ft. Worth Brain Tumor Walk
Boston, MA - 10/13
Boston Brain Tumor Walk
Silicon Valley, CA - 10/21
Silicon Valley Brain Tumor Ride
Los Angeles, CA - 10/28
Los Angeles Brain Tumor Walk
Philadelphia, PA - 11/4
Race for Hope Philadelphia
Carlsbad, CA - 11/8
NBTS Charity Golf Classic
National Brain Tumor Society 2012 Summit
We're Transforming Tomorrow, Today. Learn more about the National Brain Tumor Society 2012 Summit, October 11-13, Boston, MA. It's about community, connection, impact, and action.
In the Brain Tumor Community
Jefferson Hospital for Neuroscience Presents
2nd Annual Brain Tumor Symposium
October 19, 2012
NBTS Chief Scientific Officer David Hurwitz to speak at Center of Cancer Systems Biology Lecture
October 30, 2012
Society for Neuro-Oncology (SNO) Presents 17th Annual Scientific Meeting and Education Day
November 15-18, 2012
A*STAR Scientists Discover Potential Drug for Deadly Brain Cancer
Mayo, UCSF Team Discovers Genomic Variant That Increases Risk of Brain Tumors
Genentech Study Showed That Adding Avastin To Radiation And Chemotherapy Significantly Extended The Time People With An Aggressive Form Of Brain Cancer Lived Without Their Disease Worsening
More research news