National Brain Tumor Society
 
Transforming Tomorrow, Today
Published by the National Brain Tumor Society, this monthly newsletter includes updates on our integrated research, advocacy, and public policy programs, as well as upcoming events across the nation and in your community.

December 2012

Thanks for Your Part in This Amazing Year

Wow, it has certainly been a busy year for this community - we got to know you at our Walks, Races, and Rides, shared stories, and had the opportunity to experience all of the passion and dedication you each possess. We can’t even begin to express our gratitude for your generous support, time, energy, and commitment - as you unite with us to fight brain tumors. We know we can’t do this alone, and we are so very grateful for all of your contributions.

Did you know?

2012 Boston Brain Tumor Walk.jpg The Boston Brain Tumor Walk hosted over 3,000 individuals and teams.

We hosted events in more than a dozen cities including our first ever golf tournament in San Diego, and our inaugural Belle Notte gala event in DC - gathering more than 35,000 people across the country to represent and support the brain tumor community.

Bella Notte 2.jpgBella Notte, a gala benefiting the Brain Tumor Institute at Children's National Medical Center and NBTS, was a moving night for the over 300 guests in attendance.

We fought off deep cuts to the largest funder of brain tumor research - the National Institutes of Health, and successfully lobbied the Food & Drug Administration for a new review process for brain tumor drugs. And, we keep pushing for oral chemotherapy parity to make sure patients can access the treatments they need, in a more affordable way.

2012 Summit_Annual Meeting.jpgOur 2012 Summit gathered the top minds in research to share updates and new approaches.

We are funding the best researchers at leading institutions across the United States with current projects focused on creating safe and effective treatments for pediatric brain tumor patients, supporting more team-based science to find breakthroughs sooner, and, advocating for other organizations to focus on more rapid discovery to find a cure.


Head to the Hill 2012Advocates met with over 90 Congressional offices at Head to the Hill, our annual advocacy day.



The Oligodendroglioma Research Fund will support promising research specifically targeted at creating new treatments to fight oligodendroglioma, an especially aggressive tumor type for children and young adults.

With the help of our strong advocate base, members of Congress received almost 5,000 letters which represented the collective voices and needs of the brain tumor community. Educating policymakers is vital to strengthen research, advance therapies, and improve health care.

As we continue to fund research to better understand the complexities of brain tumors, partner with organizations who can help speed up the discovery of effective and safe treatments, and fight for critical health care policies and access to care, we never forget what drives us each and every day. It’s all of you, and we won’t rest until a cure is found.

In Memory of Walter Newman

Walter Newman
We are greatly saddened to learn of the passing of Walter Newman (age 91) on December 8, 2012. Mr. Newman founded and served as president of the National Brain Tumor Foundation (NBTF) in San Francisco after his son, Robert, died from a brain tumor. In 2008, NBTF merged with the Brain Tumor Society to become the National Brain Tumor Society (NBTS), where he later served as a board member. His service, compassion, and dedication to the brain tumor community will be one of the many legacies for which he will always be revered and remembered. View more

Community Events Update

Michael Lewandoski Ski Day
Winter Park Resort, CO - 1/26
The Michael F. Lewandowski Annual Ski Day will enter its 10th year of raising awareness and supporting research. Join us for an inspiring day out on the slopes.

Valentine's Humanitarian Gala: A Celebration of Love & Marriage
Fullerton, CA - 2/16
Join us for the Valentine's Humanitarian Gala. This black-tie event will be held at California State University, Fullerton's Portolla Pavilion A in the Titan Student Union. Check out this video to hear their story.

eNewsHolidayGraphic cropped.jpg

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Upcoming 2013 Events

Phoenix, AZ - 3/16
Phoenix Brain Tumor Walk

Wilmington, DE - 4/27
Delaware Brain Tumor Walk

San Francisco, CA - 5/4
Bay Area Brain Tumor Walk

Washington, DC - 5/5
Race for Hope - DC

See all events

Advocate of the Month

2012-2013 State Lead Advocates
December's Advocate of the Month is...YOU!
Our advocates made great strides this year. We grew to over 10,000 strong, and together, we made sure policymakers heard the voices and stories of the brain tumor community. We couldn’t do it without each of you!

Join us become an advocate today.


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In the Brain Tumor Community

Are you a patient or caregiver? Please consider sharing your experience to help others. Take part in the Cancer Support Community Survey today.


Recent Articles

Patient's Own Immune Cells May Blunt Viral Therapy For Brain Cancer

Drug Shrinks Brain Tumors in Children with Tuberous Sclerosis Complex

More research news

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National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.

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