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National Brain Tumor Society

March 2013 Public Policy Update: Advocates spring into action!

  • Appropriations Update
  • Rally With Us for Medical Research
  • Register Today for Head to the Hill 2013
  • Advocate of the Month: Lisa McDermott 

As always, you can view the full PPA update on our website.

Appropriations Update

There has been a lot of federal budget activity over the past several weeks. For a rundown of what is going on and what it all means for the programs that matter most to the brain tumor community, please see our full update.

Rally With Us for Medical Research

Close to 150 partnering organizations, including the National Brain Tumor Society, are joining together on Monday, April 8, to call on our nation’s policymakers to make lifesaving medical research funding a national priority. Federal funding for medical research continues to decline, threatening the future health of Americans and future breakthroughs in brain tumor research. The Rally for Medical Research will unite thousands of Americans across the country to raise awareness about the critical need for a sustained investment in the National Institutes of Health and other federal agencies that improve health, spur more progress, inspire more hope, and save more lives. If you would like to join us in DC, please email Jennifer Lemmerman at jlemmerman@braintumor.org.

Can’t come to DC? No problem! There are lots of ways that you can be involved:

  • Watch the rally right from your home or work computer
  • Write to your Members of Congress and ask them to preserve the nation’s investment in medical research.
  • Spread the word through social media. On April 8, we’ll be updating you live through Facebook and Twitter using the hashtag #RallyMedRes. Watch for these posts and share them with your networks. Post your own messages about why this effort is important to you. You can grab the attention of your Members of Congress by tagging them in your Tweets. Find their handles here: http://www.tweetcongress.org/.

Register Today for Head to the Hill 2013

There are just three weeks left to register for Head to the Hill, our annual Washington, DC-based advocacy event. This two-day event, held May 6 and 7, includes a half-day of training on key public policy issues, and full day of meetings on Capitol Hill to speak with Members of Congress about how they can help strengthen research, advance therapies, and improve health care. You will also have the opportunity to interact with other brain tumor advocates and National Brain Tumor Society staff. No previous experience is necessary. All you need to participate is a passion for fighting brain tumors and the most powerful tool - your voice. 

Register Today - and make a difference for the 688,000 Americans living with a brain tumor.

Advocate of the Month: Lisa McDermott

This month, we honor a survivor and incredible advocate - our Maryland Lead, Lisa McDermott.  Lisa first became involved in fighting for public policy issues that matter to the brain tumor community by joining us for Head to the Hill in 2012, and has been advocating ever since. She dedicates her time to spreading the word and letting others in her community know how they can help. Throughout the past several months, she has had several speaking engagements at healthcare organizations and local schools, sharing her journey, and increasing awareness about brain tumors and the policy issues that will strengthen research, advance therapies, and improve health care.

This year, she is looking forward to participating again in Head to the Hill 2103, leading a strong group of Maryland advocates. While in DC, she will also participate in the Race for Hope, as the team captain of the Trendy Tumor Trotters. In July, she’ll hold her first fundraising event in support of National Brain Tumor Society - a golf tournament called Tee Up for Tumors in her hometown of Ebensburg, PA. 

Lisa your dedication and support is incredible. Thank you for being an advocate and an inspiration!

And thanks to all of you for your continued advocacy for the brain tumor community.

David F. Arons, JD
Director of Public Policy
darons@braintumor.org

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and those who will be diagnosed tomorrow. This means effecting change in the system at all levels. It's time to build on progress and transform tomorrow today.

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