Transforming Tomorrow, Today
News & Updates from the National Brain Tumor Society
February 2015
Your Voice. Your Experience. Your Treatment.

Adding measures of patients' symptoms, signs, and functions into brain tumor clinical trials will ultimately improve patient care. But first, doctors, researchers, drug makers, and the FDA must fully understand what matters most to patients. To get this critical insight to stakeholders in the drug development and approval process, the National Brain Tumor Society distributed a survey to brain tumor patients, caregivers, and families because the most important voice in this effort is yours. These researchers, companies, and regulators need to know what patients want in terms of treatment options. Clearly, living longer and finding a cure is our number one priority. But, there may be treatments that reduce symptoms or improve quality of life, and those treatments should be evaluated through the clinical trial process, as well.

We thank everyone who took our Survey to help inform these stakeholders in brain tumor drug development, and as promised, are sharing some of our early findings back with the community in this new infographic.

From the Blog
January 15, 2015
Immunotheraphy: A Two-Part Q&A with Dr. John Sampson

"Immunotherapy" is one of the hot topics in cancer research right now. To help us and our community understand more about immunotherapies - what they are, how they works, promises, and challenges - we reached out to one of the leading experts in brain tumor immunotherapy, Dr. John Sampson from Duke University, who kindly dedicated his time for a two-part Q&A. Read More

January 20, 2015
National Brain Tumor Society Receives Four-Star Rating From Top Independent Charity Evaluator

National Brain Tumor Society has been awarded the top rating of four stars from the leading independent charity review source, Charity Navigator. This rating designates the National Brain Tumor Society as an "exceptional" nonprofit and indicates that the Organization is in an exclusive category, as only 25% of the organizations that Charity Navigator reviews receive the full four-star rating. Read More

see all blog posts
Research in the News
Clinical Outcome Assessments in Brain Tumor Clinical Trials: Summary of a Jumpstarting Brain Tumor Drug Development Coalition Workshop (PDF)

What Do Brain Tumor Patients Want? Results from the Clinical Endpoints Trial Survey

Glioblastoma: Three Genes Tied to Radiation Resistance in Recurrent Tumors

Understanding a Complex Brain Cancer: SickKids-Led Study Links Genetics of Cells With Diverse Growth and Drug-Resistant Behaviours Within the Same Tumour

BMS and Lilly to Jointly Research Opdivo Combination

RestorGenex Granted Orphan Drug Designation for RES-529 for Treatment of Glioblastoma Multiforme

Computational Approach Finds Gene That Drives Aggressive Brain Cancer
Upcoming Events
2015 Bella Notte
Washington, DC - Thursday, February 26, 2015
Charlotte Brain Tumor Race
Charlotte, NC - Saturday, March 21, 2015
Delaware Brain Tumor Walk
Wilmington, DE - Saturday, April 25, 2015
Bay Area Brain Tumor Walk
San Francisco, CA - Saturday, May 2, 2015
Race for Hope DC
Washington, DC - Sunday, May 3, 2015
Event Spotlight
Washington, DC - May 4-5, 2015
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National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.
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