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VOLUME 4, ISSUE 2
February 2019
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Announced earlier this week, the National Brain Tumor Society (NBTS) and the Brain Science Foundation (BSF) have partnered to establish the Meningioma Research Fund. In support of our shared mission to conquer and cure brain tumors, the goal is to raise and grant new funds specifically for meningioma brain tumor research that will accelerate treatments.
Meningioma, the most common primary brain tumor, accounts for 37 percent of all brain tumor diagnoses and approximately 30,000 new cases every year in the United States.
Read the full Meningioma Research Fund news release.
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Event Details | The Experience | Travel & Accommodations | FAQs
This two-day event has become a powerful vehicle to ensure the voice of the brain tumor community is being heard on Capitol Hill. Your participation will help Congress better understand the critical and urgent needs of this community and the policies that are vital to ensuring availability of treatments, increased scientific research, and the discovery of a cure.
At Head to the Hill, you will:
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Learn about key public policy issues facing the brain tumor community
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Speak with congressional leaders to raise awareness of the issues, needs, and priorities of the brain tumor community
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Meet other brain tumor advocates from across the United States
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Make a difference in the lives of the hundreds of thousands of Americans living with a brain tumor
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Presented by the NBTS Public Policy and Advocacy team, hear from advocates, brain tumor patients, and care partners as they detail their experiences attending previous Head to the Hill events and learn how your story can make a difference for the brain tumor community.
Watch the Head to the Hill Webinar.
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SPRING EVENTS
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Connecticut Brain Freeze
SUN, MAR 3, 2019
Shamrock 'N' Run 5k
SAT, MAR 16, 2019
Charlotte Brain Tumor Race
SAT, MAR 23, 2019
NEW! – Northwest
Brain Freeze
SAT, APR 6, 2019
Rhode Island Brain Tumor Walk
SUN, APR 14, 2019
Race for Hope – DC
SUN, MAY 5, 2019
Northwest Brain Tumor Walk
SUN, MAY 5, 2019
San Diego Brain Tumor Walk
SAT, MAY 11, 2019
Central NJ Brain Tumor Walk
SAT, MAY 11, 2019
2nd Annual Joggin' 4 the Noggin 5k Run/Walk
SAT, MAY 18, 2019
Boston Brain Tumor Ride
SUN, MAY 19, 2019
Denver Brain Tumor Walk
SAT, JUN 1, 2019
New York City Brain
Tumor Walk
SUN, JUN 9, 2019
Bay Area Brain Tumor Walk
SUN, JUN 23, 2019
Find or start an event >>
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NBTS Programs
Public Workshop: Product Development for Central Nervous System (CNS) Metastases
On Friday, 3/22, NBTS and the U.S. Food & Drug Administration (FDA) will sponsor a workshop focusing on Central Nervous System (CNS) Metastases in Silver Spring, MD. This workshop will bring together key stakeholders to evaluate unmet patient needs and how to advance development of treatments and clinical trials.
Learn more & Register.
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Community Stories
Team Billy Ride & Walk for Research Kicks Off its 15th Year
Inspired by their son, the Grey family created Team Billy to promote awareness and support to find a cure for brain tumors. Since 2004, a bike ride and walk was established in Saratoga Springs, NY to involve the community where Billy Grey lived. Join us on Sunday, 5/19, with three bike ride distances of 50-, 25-, and 10- miles.
Learn more about Team Billy.
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National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners. Our vision is to conquer and cure brain tumors – once and for all.
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