VOLUME 4, ISSUE 6

June 2019

National Brain Tumor Society 2018 Annual Report Now Available

In 2018, we were utterly dissatisfied with the finding in National Cancer Institute's 2018 Annual Report to the Nation indicating that mortality rates due to brain tumors are increasing. As a result, NBTS committed to a new strategy designed to help us move faster and have an even greater impact.

Our 2018 Annual Report is a reflection of our progress and how we prioritize our key values of putting patients first, providing best-in-class science and service to our community, and being relentlessly results-driven.

Thank you for being an integral part of the past year's successes. Please continue to join, unite, support, and take action with us as we strive to help patients and families every day. Together, let's put exceptional research to work for treatments that help every member of our community.

Download the 2018 Annual Report

Join the Next Brain Tumor Support Conversations July 21

Launched this month, Brain Tumor Support Conversations is a monthly, peer facilitated, online support group to further unite the brain tumor community. Facilitated by Adam Hayden and Lisa O'Leary, this support group will provide a safe and welcoming space where patients and loved ones can talk about the feelings and emotions that are difficult to discuss with those who have not been affected by a brain tumor diagnosis.

Sign up now | Learn more about Lisa & Adam

Inaugural Glioblastoma Awareness Day Set for July 17

National Brain Tumor Society proudly endorsed and championed the bipartisan resolution designating July 17, 2019, as "Glioblastoma Awareness Day." Join us on July 17 as we come together to #HonorAndAct in support of the patients, families, and care partners who have faced GBM - and raise national consciousness about our stake in finding a cure.

Don't want to wait? Take action now. Make a gift today to support critical research with the potential to advance new treatments and change the future for patients and families facing GBM.

UPCOMING EVENTS

Camden Hancock Benefit Golf Outing
THUR, JUNE 27

Bags and Brews for Brains
SAT, JUNE 29

U-Jam for the Cure
SUN, JUNE 30

Madison Brain Tumor 5k
SAT, JULY 13

Life Never Stops Celebration
WED, JULY 17

BlakeStrong Fest
SAT, JULY 20

Bob Burns Memorial 5K
SUN, JULY 28

Find or start an event >>


Events & The Field

Bay Area Celebrates the 25th Brain Tumor Walk

Last Sunday in San Francisco, NBTS celebrated the 25th anniversary of one of its original signature events, the Bay Area Brain Tumor Walk. With over 2,000 people in attendance, and raising over $430k, there was laughter, tears, but most importantly - connection and community. A number of people and partners were highlighted during the day including our enduring relationshop with the UCSF Brain Tumor Center all of which made the day a memorable one.

Learn more about the Bay Area Brain Tumor Walk


NBTS Programs

First Clinical Site and Enrollment for GBM AGILE Adaptive Trial Now Open

Last week, the first-ever global adaptive clinical trial platform for brain cancer, GBM AGILE, announced that its first trial site had opened at the Henry Ford Cancer Institute in Detroit, MI. With this first clinical site open, trial leaders are now beginning to enroll patient in GBM AGILE's first treatment arm with the Bayer drug regorafenib. Ultimately, this new type of trial will enable the evaluation of multiple experimental drugs simultaneously across numerous parallel trial arms happening across several continents.

Learn more about GBM AGILE


Community Stories

5th Annual P&D Student Choreography Project Raises Over $16k

Started by Teri Day in honor of her father, Larry, who passed away from glioblastoma in 2014, this event brings together high school students to choreograph a dance piece for a group of dancers age 11+. Taking place at Priscilla & Dana's School of Dance in Kansas City, Missouri, this year's event featured former NFL cheerleader and survivor Shanna Adamic and over $16k raised for NBTS.

Learn more about P&D Student Choreography Project | View Teri's images of the event

FROM THE MEDIA CENTER

Conversation Starters: Lisa O’Leary and Adam Hayden Discuss Their New Virtual Support Forum

Glioblastoma Awareness Day Resolution Passes U.S. Senate with Unanimous Support

"Annual Report to the Nation on the Status of Cancer" Finds Brain Tumor Death Rates Not Improving for Fourth Straight Year, Despite Positive Overall Trends in Cancer

Bay Area Brain Tumor Walk & UCSF: Celebrating 25 Years of Collaboration


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National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners. Our vision is to conquer and cure brain tumors – once and for all.
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