VOLUME 4, ISSUE 8

August 2019

Join Us This September for Childhood Cancer Awareness Month

September is observed annually as Childhood Cancer Awareness Month (CCAM) in the United States, a time to recognize and honor children that have been affected by cancer and the families that care for them, while highlighting the critical need to support research that can lead to safer and more effective treatments for our most vulnerable patients. As brain tumors are the leading cause of cancer-related mortality in children, as well as the most commonly diagnosed cancer in children 14-years-old and younger, the brain tumor community has an enormous stake in Childhood Cancer Awareness Month.

This September, submit a September Superstar, join us at a signature or community event, get social with us by sharing pediatric brain tumor stories using #CCAM, or make a gift today to support critical research with the potential to advance new treatments and change the future for children facing brain tumors.

Give today for Childhood Cancer Awareness Month.

Sharpe-NBTS Brain Cancer Awards Provide $500k for Innovative Brain Cancer R&D Efforts

Awarded through the fundraising and generosity of 54-month glioblastoma survivor, Bob Sharpe, and his Today is a Good Day Foundation, NBTS announced funding for cutting-edge brain cancer studies at 10 leading scientific laboratories across the US.

Learn more.

Fundraising Gets Personal for Two-Time Meningioma Survivor

After twice receiving treatment for meningioma brain tumors, Sharon Mottola has dedicated her time, family, and friends to raise funds to support NBTS's overall mission delivery programs in research and public policy advocacy. This past year, Sharon’s fundraising took on extra special meaning with the introduction of the NBTS-Brain Science Foundation Meningioma Research Fund.

"I thought it was amazing!" says Sharon. "The fact that I could go ahead and allocate my team's fundraising to what I suffer with, and am suffering with, to me was just very special to know that I could allocate the funds specifically for my cause…and I was just super thankful that this fund was created and we could do that."

Read more about Sharon's story & the Meningioma Research Fund.

UPCOMING EVENTS

4th Annual NBTS Nature Walk
SAT, SEPT 7

The Red Lips Formal
SAT, SEPT 14

OKC Brain Tumor Walk/5K Run
SAT, SEPT 14

Orange County Brain Tumor Walk
SAT, SEPT 14

Long Island Brain Tumor Walk
SAT, SEPT 14

Maryland Brain Tumor Walk
SAT, SEPT 14

Northern NJ Brain Tumor Walk & Gray Mud Run
SAT, SEPT 21

2019 Jones'n for a Cure Golf Tournament
MON, SEPT 23

Find or start an event >>

Events & The Field

New Fundraising Prizes for Signature Events

Event participants work very hard in the fight against brain tumors. NBTS has fundraising challenges to help you reach personal or team goals – plus fundraising prizes are our way of saying THANK YOU! This September join us at a signature event and earn long-sleeved tees, sweatshirts, jackets – even see "who you walk for" on the Angel Stadium jumbotron!

Find an event near you.

NBTS Programs

Results from Your Advocacy & What's Next

The NBTS Public Policy Advocacy team recently shared a mid-year update, including encouraging news on funding for medical research, and the introduction of the Palliative Care and Hospice Education and Training Act in the Senate. Let's keep the momentum going as Congress returns to work following the annual August Congressional Recess.

Read more.

Community Stories

2019 Falmouth Road Race Raises Over $18k

On August 18, seven members supporting NBTS through the Gray Nation Endurance program put meaning behind their miles in the 2019 Falmouth Road Race. While raising over $18,000, this team also raised awareness and inspired change in the fight against brain tumors. Congratulations to Maureen, Ron, Josh, Steven, Cheryl, Anna, and Kelly for successful fundraising and a terrific race day.

Join the NBTS Gray Nation Endurance Program.

FROM THE MEDIA CENTER

Mavericks & Lions Wanted: Remembering Senators John McCain & Ted Kennedy and America’s Stake in the Fight Against Glioblastoma

A Missing Link to Glioblastoma Growth?

NBTS Brain Tumor Clinical Trials Report – August 2019

Phase III Brain Tumor Clinical Trials Open for Patient Enrollment – July 2019 Update


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National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners. Our vision is to conquer and cure brain tumors – once and for all.
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