VOLUME 5, ISSUE 6

June 2020

GBM Awareness Day
Save the Date: July 22, 2020

This year, we are once again working with our champions in Congress to officially designate a dedicated Glioblastoma Awareness Day in the United States.

Glioblastoma (GBM) is the most common and deadliest form of brain cancer, impacting approximately 13,000 men, women, and children each year. It's taken the lives of too many across the country, and treatment options remain limited. We hope you will join us virtually for GBM Awareness Day on July 22nd to honor and act for GBM patients, families, and care partners, as well as recognize the tireless work of researchers and medical providers.

In the coming weeks, we'll share ways that you can honor, learn, and act on #GBMDay. For now, we need your help to advance the resolution through Congress by asking your representatives in the House and Senate for their support.

Get Access to Services

NBTS patient and care partner education and navigation services provide personalized support, care, and comfort for the brain tumor community, especially in light of how COVID-19 affects the accessibility of brain tumor care.

COVID-19: What the Brain Tumor Community Needs to Know

NBTS Personalized Support and Navigation Program

Brain Tumor Support Conversations

The Brain Tumor Experience

NBTS Clinical Trial Finder

Telehealth Resources

National Brain Tumor Society 2019 Annual Report Now Available

During these challenging times, NBTS remains grateful for the remarkable progress we have made – and will continue to strive for – in the fight against brain tumors. We are also grateful for our many generous supporters, who have made this work possible.

In the spirit of celebrating our wins, we are happy to share our 2019 Annual Report. 2019 was a tremendous year for the brain tumor community, bringing advances in research, community building, and advocacy across the country. The Annual Report, which is now available, highlights some of the most important stories of the year, and the people who made them possible. Our work, together, tangibly further advanced brain tumor research and treatment development, patient access to care and support, and continues to improve the lives of patients and their families.

UPCOMING EVENTS

Maryland Brain Tumor Walk
SAT, SEPT 12

Southern California Brain Tumor Walk
SAT, SEPT 26

Long Island Brain Tumor Walk
SAT, OCT 3

Race For Hope Philadelphia
SAT, OCT 10

Boston Brain Tumor Walk
SUN, OCT 18

Ft. Worth Brain Tumor Walk
SAT, NOV 7

RVA Brain Tumor 5K
SAT, NOV 7

Phoenix Brain Tumor Walk
SAT, DEC 5

Florida Brain Tumor Race
SAT, DEC 5

Defeat

New Brain Tumor Clinical Trial Report Released

It can be hard for patients and care partners to keep track of new clinical trial opportunities opening across the country, especially during the current public health crisis created by the coronavirus (COVID-19). However, there are many brain tumor clinical trials still actively enrolling patients, and this report provides a summary of the studies that have recently opened or started to evaluate potential new treatments for brain tumor patients.

View the latest Clinical Trial Report

Search for brain tumor clinical trials

Change

Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act

"On the two-year anniversary of this bill becoming a law, we celebrate the progress, from the National Cancer Institute’s work on survivorship research and initial work on biospecimen collection to the CDC’s expansion of its early case-capture program, we have seen action and a willingness to engage with the patient advocacy community from these important agencies."

Read the guest blog post from Danielle D. Leach, MPA, Chief of Community and Government Relations.

Connect

Make an Even Bigger Impact for the Brain Tumor Community

Now, more than ever, philanthropy fuels our ability to connect patients and their families with essential services. Our new Sustaining Donor program is an easy and powerful way to provide ongoing support for this urgent work. By signing up to make a monthly recurring gift, you can spread your giving throughout the year, and make an even bigger impact for the brain tumor community.

Become a Sustaining Donor

FROM THE MEDIA CENTER

[RECAP] Brain Tumor Awareness Month 2020

National Brain Tumor Society Commends Congressional Awareness Month Resolution

National Brain Tumor Society Provides Funding to Expand the Potential of a Promising Therapeutic in Development for Glioblastoma

Brain Cancer Groups to Fund Pilot Trial of Individualized Approach to Immunotherapy


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National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners. Our vision is to conquer and cure brain tumors – once and for all.
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