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Synapse eNews is published monthly by NBTS to share Patient Services, Research, and Advocacy program updates, news about therapies, and regional events with all members of the brain tumor community. April 2010
Photo: Mark Cole, Deputy Executive DirectorMay is Brain Tumor Awareness Month and NBTS, as part of the North American Brain Tumor Coalition (NABTC), encourages you to unite with other brain tumor advocates from across the country. Engage with members of Congress to take action to improve brain tumor patients' quality of life and to fund research toward new therapies that will treat this devastating disease during Brain Tumor Action Week, May 2-8.
In Washington, DC on May 3, we invite you to an education day, focusing on brain tumor research and care, and including training for advocacy visits to Congress. On May 4, advocates will meet with their Representatives and Senators on Capitol Hill to discuss policy issues of importance to the brain tumor community.
If you can't make it to Washington, you can still get involved. NABTC offers information on how to be an advocate close to home. Visit our website for more details on how to participate in DC or at home.
NBTS to Participate in the 2010 Canadian Neuro-Oncology Meeting
NBTS and the Brain Tumor Foundation of Canada, in collaboration with Drs. Charles Eberhart, David Eisenstat, and Abhijit Guha, are delighted to have organized a mini-symposium, "Developmental Neurobiology and Pediatric Brain Tumors," to be held on May 15 as part of the 2010 Canadian Neuro-Oncology meeting in Niagara-on-the-Lake, Ontario.
The purpose of the symposium is to highlight how research on the continuum from prenatal to postnatal developmental neurobiology can be used in conjunction with pediatric brain tumor research in the discovery of effective brain tumor therapies with minimal adverse effects on the development of the child.
NBTS and the Brain Tumor Foundation of Canada will issue a joint RFA on Developmental Neurobiology in early Summer.
NBTS Board Secretary on Pediatric Research Panel
The Department of Defense's Congressionally Directed Medical Research Programs (CDMRP) innovative vision of research integrates the experiences of consumers with the knowledge of the scientific community in the funding review process. Currently, the program awards $15 million in research grants for several diseases, including pediatric brain tumors. During Brain Tumor Action Week, NBTS and the NABTC are seeking Congressional approval to increase funding for the program to $50 million. Cord Schlobohm, NBTS Board Secretary, currently serves as a consumer reviewer. Read his profile here.
Patients, Family & Friends
Recap of the March "Living with a Brain Tumor" Conference
Thanks again to our incredible speakers at our recent conference in Washington, DC, including Dr. Howard Fine, MD, Chief of the Neuro-Oncology branch at NCI's Center for Cancer Research. For those interested, you can now find the speaker presentations on our website.
Some other useful links from the day include: If you have any additional questions, please contact NBTS Patient Services by phone at 800.934.2873 or email at info@braintumor.org.
Get Involved
Register, donate, or volunteer for one of our inspirational Spring events! Nothing in your area? Check out other locations for upcoming Fall events or start an event of your own!
Beautiful spring weather means golf season is upon us. Check out some of the golf events coming up:
Golf for HopeGolf for Hope | April 30, 2010
This premier golf outing is part of a special weekend dedicated to creating awareness and raising funds in support of the brain tumor community. Online registration is closed, but you can email
golf4hope@yahoo.com to check availability.
3rd Annual Nick Gonzales Charity Golf Tournament
May 7, 2010

Have fun with friends and support brain tumor research! This event will be held at Bridlewood Golf Club in Flower Mound, TX. After golf, both golfers and non-golfers alike can enjoy an upscale dinner and other activities. Learn more about this event.
Kelley Johnson Memorial Golf Tournament | May 24, 2010
Featuring a putting contest and a shotgun tournament, this event will take place at Banbury Golf Club in Eagle, ID. Register today to save your spot. Learn more about this event.
Ways to Help
How to Help
Your contributions help us to advance the most promising research for improved treatments and a cure, and provide critical information, support, and services to patients and families coping with a brain tumor diagnosis.
Please consider supporting NBTS and the brain tumor community: However you choose to support NBTS, thank you. Together we are making a difference!
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News and Events
Join us in the fight against brain tumors.
Bay Area, CA - May 1
Brain Tumor Walk
Wilmington, DE - May 1
'Get Your Head in the Game' Brain Tumor Walk
Washington, DC - May 2
Race for Hope - DC
Boston, MA - May 16
Boston Brain Tumor Ride
Denver, CO - June 5
Brain Tumor Walk
Save the date for 2010 NBTS Fall Events
Portland, OR - Aug. 28
San Diego, CA - Sep. 11
Silicon Valley, CA - Sep. 19
Boston, MA - Oct. 2
Southern CA - Oct. 16
Phoenix, AZ - Oct. 23
New York, NY - October 17
Dallas-Ft. Worth, TX - Nov. 6
Philadelphia, PA - Nov. 7

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Visit My.BrainTumor

Log on to My.BrainTumorCommunity.Org today and begin connecting with others who understand what you are going through. You can also create a profile and share photos, as well as create your own blog. Or, read the NBTS "Headquarters" Blog, written by our Patient Services staff.
Family Caregiver Workshop - Rochester, NY
Are you caring for a loved one with a brain tumor? Would you like to learn more about symptom management, cognitive changes, and finding community resources?
The University of Rochester Medical Center is hosting a free Family Caregiver Workshop on Saturday, May 8, 2010. Learn more.
6th Annual Team Billy Ride & Walk for Research
May 16, 2010

Just a reminder that the Team Billy Ride and Walk for Research will take place on Sunday, May 16 in downtown Saratoga Springs. The 25-, 50-, and 100-mile rides follow some of the most beautiful sections of Saratoga County. Learn more.
Research in the News:
HRGP (Histadine-Rich Glycoprotein) Modulates Angiogenesis
Brain Cancer: Study Focuses on Forgotten Cells
Latest Research News on Homepage
You may have noticed a new addition to our homepage - we have added a newsfeed that pulls in the most recent brain tumor research headlines. We hope you find this to be a useful resource!
Sign the Awareness Stamp Petition
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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration
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