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Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Patient Services, Research, and Advocacy and Public Policy programs, as well as the latest research news, and information on NBTS regional events. November 2010
PhotoTogether we will see change
The year may be wrapping up but NBTS is already looking forward to an exciting 2011. With new research initiatives, evolving patient services, and an expanding public agenda, we are making changes to improve the lives of all those affected by brain tumors. Help us make an impact with a year-end donation today. Share the spirit of the holiday season with a tax-deductible donation to NBTS in honor or memory of a loved one and join with us to make change happen.
Ependymoma tumors: Recorded webinar and "Ask the Expert" session
Visit our Online Educational Programspage to watch and listen to a pre-recorded webinar on ependymoma tumors with Dr. Mark Gilbert, neuro-oncologist at MD Anderson Cancer Center and
principal investigator at the CERN Foundation. Then join Dr. Gilbert and NBTS on Tuesday, November 30 at 11 AM PST (1 PM CST; 2 PM EST) as he answers participants' questions about ependymoma tumors. All are welcome to join us for this free "Ask the Expert" webinar. For more information on how to register, please
visit our website. For all other questions, please contact Rebecca at 415.318.5717 or at
Society for NeuroOnocology logoNBTS at the Society for NeuroOncology Meeting
Members of the NBTS staff are headed to Montreal, Canada for the Society for NeuroOnoclogy (SNO) Scientific Meeting. Mary Lovely, RN, PhD, Medical Information Specialist at NBTS, will serve as Chair of the Quality of Life Education Day, as well as present at the poster session. Other staffers will be attending sessions and research meetings, and answering questions at the NBTS booth. We'll be posting updates on Facebook and Twitter, so be on the lookout to learn what exciting events are taking place.
Conversations about systems biologyConversations about systems biology
The new NBTS research initiative in systems biology looks at the complex interactions of intricate systems of brain tumors. We at NBTS, along with our Scientific Advisory Council Chair, Dr. Oliver Bögler, have prepared a series of interviews with experts in the field in order to gain from their personal insights, points of view, and connections to systems biology research. Learn more.
Photo: Race for Hope - PA2010 event wrap-up
You are incredible! As the 2010 event season comes to a close, we look back on the 14 events held throughout the country and are so thankful for the over 27,000 of you who united with us to fight brain tumors. Your efforts helped raise awareness and more than $6 million to support brain tumor research, patient services, and advocacy programs at NBTS.
Our two new events - the Silicon Valley Brain Tumor Ride and the Boston Brain Tumor Walk - were both a huge success and together raised over $500,000! We're adding another new event in 2011 — the New York Brain Tumor Walk, scheduled for June 18 on Governor's Island. Look
on our website soon for more information about all 15 events for 2011.
Story CornerUpdates from our Story Corner
It has now been over a month since the Story Corner section of our website launched. Thank you to all of you that have shared your written stories with us. If you are interested in sharing your story with NBTS and the brain tumor community, visit our story submission page. Here's an excerpt from a recent story submission titled "Faces of Change": The faces of change are worn in many shades, colors and emotions. Eleven years a survivor, once introduced to the notion of having a brain tumor, life would give me the chance to wear many faces. I start working backwards from today; I am still a fighter, and still face many more.
NBA Team logos Seven NBA teams agree to contribute to Justin's Quest
The Washington Wizards, Minnesota Timberwolves, Dallas Mavericks, San Antonio Spurs, New Jersey Nets, New Orleans Hornets, and Charlotte Bobcats have all signed on to donate their baskets from the regular season to Justin's Quest. So far these have totaled over 4,000 baskets! Justin and his family are extremely inspired by the support they are receiving from so many people across the country. If Justin can reach his goal of 63,000 baskets my mid-February, he will have the opportunity to shoot his last basket at NBA Jam Session during NBA All-Star week in Los Angeles. Justin is extremely motivated to make this dream a reality!
Update from Community Events
All over the country, people whose lives have been affected by brain tumors are organizing events to support NBTS's work. Here are some highlights from October:
  • At the 13th Mike Wengerter Memorial Golf Outing, 110 golfers raised $5,739. This event has raised over $80,000 since it began in 1997. The Wengerter family is already looking forward to next year's event on September 17, 2011.
  • On October 23, 2010, Deborah Moormann organized the 6th Annual Dave Moormann Memorial Show in St. Louis, Mo. This event, held to honor Dave and his music, featured live music, an auction, and raffle prizes and raised $4,000.
  • Held on October 30, Beers for Brains, a charity pub crawl in Fairport, N.Y. organized by Courtney Porray, raised nearly $5,000 in memory of Mary Kay Butera.
Interested in setting up your own event, but not sure how to start? Visit the Community Events section of our website.
KHG Holiday CardsHoliday cards to benefit brain tumor programs
The Kelly Heinz-Grundner Brain Tumor Foundation (KHG) is proud to once again offer two special Holiday Cards featuring the beautiful artwork of Owen Klimoff. Owen, a 15-year-old artist who passed away from a brain tumor on October 28, 2008, kindly donated his artwork for this program prior to his passing and KHG is honored his memory will live on through this project. Quantities are limited, so order yours today!
Button: Donate to the NBTS Annual Appeal
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Save the date for the 2011 NBTS events

Wilmington, Del. - April 30
Brain Tumor Walk

Washington, D.C. - May 1
Race for Hope

San Francisco, Calif. - May 7
Brain Tumor Walk

Boston, Mass. - May 15
Brain Tumor Ride

Saratoga Springs, N.Y. - May 15
Team Billy Ride and Walk

Denver, Colo. - June 4
Brain Tumor Walk

New! New York, N.Y. -
June 18

Brain Tumor Walk

Portland, Ore. - Aug. 20
Brain Tumor Walk

San Diego, Calif. - Sept. 10
Brain Tumor Walk

Silicon Valley, Calif. - Sept. 17
Brain Tumor Ride

Boston, Mass. - Oct. 1
Brain Tumor Walk

Southern Calif. - Oct. 15
Brain Tumor Walk

Phoenix, Ariz. - Oct. 22
Brain Tumor Walk

Dallas-Ft. Worth, Texas - Nov. 5
Brain Tumor Walk

Philadelphia, Pa. - Nov. 6
Race for Hope

Items of Interest

Have you been reading the "Headquarters" Blog?
Each week the Patient Services team chooses a topic and posts stories, interviews, perspectives, resources, and more on that particular topic. Here are a few highlights from the blog this past month:
Fatigue: It happens - A few months ago, I was talking with a patient at a conference and I asked her what she was struggling with. "I'm tired ALL the time," she answered without a moment's hesitation...
Returning to Work - Nina's Story - For years I had severe headaches, dizziness, and nausea that would leave me feeling totally exhausted...
How Do I Get a Second Opinion or Find a Specialist in My Town? - Having an unusual disease such as a brain tumor may be beyond the scope of many doctors who practice in small towns...

Tulips Against Tumors Memorial Planting Ceremony
Supporters of The Kelly Heinz-Grundner Brain Tumor Foundation (KHG) gathered together to plant 500 tulip bulbs on Saturday, November 6 at the University of Delaware in Newark, Del. The special "Garden of Hope" event was part of National Tulip Planting Day, which traditionally marks the culmination of KHG's annual Tulip Against Tumors Tribute. With the help of NBTS, the program expanded nationally this year and gardeners in over 25 states participated to raise awareness for brain tumors.

Donate your car to NBTS!
When you donate your car, truck, van, or SUV to Cars 4Charities, select the National Brain Tumor Society as the beneficiary and we will receive 100% of the net proceeds. Visit the Cars4Charities website, and follow the instructions.

Recent Articles
Key Protein Controlling Blood Vessel Growth Into Brains of Mice Identified
'Nano-Drug' Hits Brain-Tumor Target: Unique Triggering Device Delivers Antitumor Drugs
More research news

Support NBTS

Learn more about ways to support NBTS and the brain tumor community through honoring a loved one, utilizing matching gifts, organizing your own fundraiser, shopping online with iGive, and more.
However you choose to support NBTS, thank you. Together we are making a difference!

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration
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