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Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Patient Services, Research, and Advocacy and Public Policy programs, as well as the latest research news, and information on NBTS regional events. December 2010
Best Wishes
The board and staff of the National Brain Tumor Society would like to offer you our thanks and best wishes this holiday season and together, look forward to the hope of the New Year.
'Tis the Season
This time of year can mean different things to different people. It may mean spending more time with family, enjoying traditions with friends, or remembering a loved one who is no longer with us. The Patient Services team is taking a closer look at coping during the holidays and provides some tips to help us with this season in the NBTS "Headquarters" Blog.
Thanks to those who attended the ependymoma tumors "Ask the Expert" session
On November 30, NBTS hosted an "Ask the Expert" Session on ependymoma tumors, with guest speaker Dr. Mark Gilbert, Principal Investigator at the CERN Foundation, and neuro-oncologist at M.D. Anderson Cancer Center. Because we received so many great questions about ependymomas that we did not have the time to respond to, Dr. Gilbert has answered some additional questions in our ependymoma forum.

Also, please also mark your calendars for an upcoming webinar on meningioma tumors scheduled for Tuesday, March 1, 2011. For more information, please email Rebecca at

Society for NeuroOnocology logoNBTS at the Society for Neuro-Oncology Meeting
At the end of November, NBTS sponsored and attended the Society for Neuro-Oncology Scientific Meeting in Montreal, Canada. The very informative and productive days included:
Join us for an upcoming event kick off
We are getting ready for our 2011 events and we need help from the local communities where these events take place. If you would like to volunteer to help plan an upcoming event, join us for one of our event kick off meetings. The next three coming up are (please use links to RSVP):
CaregiverFamily Caregiver Workshop in Jacksonville, Fla. (Telecasted to Rochester, Minn.)
Are you caring for a loved one with a brain tumor? Would you like to learn more about symptom management, cognitive changes, and finding community resources? NBTS, The Sontag Foundation, and Mayo Clinic are hosting a free Family Caregiver Workshop on Saturday, January 8, 2011 in Jacksonville, Fla. This workshop will also be telecast to the Mayo Clinic in Rochester, Minn.
MLF Ski DayUpdate from Community Events
Some may hibernate in winter, but there are two events coming up where you can continue to unite to fight brain tumors in the cold winter months.

The Kelly Heinz-Grundner Brain Tumor Foundation (KHG) Third Annual Beef and Beer Winter Fundraiser (Delaware) - Join KHG, a subsidiary of NBTS, for an evening of great food, live music, dancing, auctions, and lots of fun. Tickets are limited and last year's event sold out, so get your tickets early.

Eighth Annual Michael F. Lewandowski Ski Day (Colorado) - Share in Michael's passion for skiing and embrace the lessons he left for us on enjoying life to the fullest. The Lewandowski Family is hoping to build on the $100,000 they have raised in the past seven years.

Interested in setting up your own event, but not sure how to start? Visit the Community Events section of our website.
Annual AppealMake a year-end donation today
Join the fight against brain tumors by making a year-end donation today. This holiday season, honor or remember a loved one with a tax-deductible donation to NBTS. We will notify a designated recipient of your thoughtful gift. You can make a difference for all those affected by brain tumors. Remember, a community united is a community that can overcome.
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Register now for our upcoming spring events!

Wilmington, Del. - April 30
Brain Tumor Walk

Washington, D.C. - May 1
Race for Hope

San Francisco, Calif. - May 7
Brain Tumor Walk

Boston, Mass. - May 15
Brain Tumor Ride

See a full listing of 2011 Events

You can still donate to many of our 2010 events, including the Walks held in Denver, Colo., Portland, Ore., San Diego, Calif., Boston, Mass., Southern Calif., Phoenix, Ariz., and Dallas-Fort Worth, Texas, as well as the Silicon Valley Brain Tumor Ride and Race for Hope - Philadelphia.

Items of Interest

Have you been reading the "Headquarters" Blog?
Each week the Patient Services team chooses a topic and posts stories, interviews, perspectives, resources, and more on that particular topic. Here are a few highlights from the blog this past month:

Sibling Relationships
There was an essay published recently in The New York Times tying having siblings to happiness. While this study focused on sisters, it shows how siblings play a pivotal role for many of us in our lives as we grow up, become adults, and create families of our own...

Lauren’s Story – No Regrets or "What If's"
"I was a happy but tired mother of two little boys with a third baby on the way. My husband Paul and I enjoyed our suburban lifestyle and were surrounded by many close friends and family. After a bout of headaches, Paul was diagnosed with a brain tumor in February of 2002..."

Q & A: What are the top three symptoms common in brain tumor survivorship?
Survivorship is living with a disease, getting through every day life. Having a brain tumor may cause cognitive, visual, and motor changes. The impact of these changes can affect the ability to perform job activities or even drive a car...

Recent Articles
Researchers find switch that controls neuronal migration in the developing brain

Poor quality of biospecimens called #1 limiting factor in translational research

Everolimus approved for benign brain tumor

More research news

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration
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