Synapse eNews header
Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Patient Services, Research, and Advocacy and Public Policy programs, as well as the latest research news, and information on NBTS regional events. March 2011
NBTS receives overwhelming response to
Systems Biology RFA

NBTS believes that the brain tumor research community needs to shift from a traditional research approach to a systems biology approach, and the research community appears to be in agreement. The deadline for the Systems Biology Request for Applications (RFA) for the $5 million Mary Catherine Calisto Systems Biology Initiative was February 18, and NBTS was delighted to receive 50 applications from researchers around the world. Read more
Systems biology experts invited as ad hoc reviewers
The following systems biology experts have been invited to be ad hoc reviewers for the Mary Catherine Calisto Systems Biology Initiative RFA:

William C. Hahn, MD, PhD, senior associate member of the Broad Institute’s cancer program; associate professor at the Dana–Farber Cancer Institute and Harvard Medical School

Lynn Hlatky, PhD - founding director of the Center of Cancer Systems Biology at Caritas St. Elizabeth's Medical Center, Tufts University School of Medicine

Gordon B. Mills, MD, PhD, chairman, Department of Systems Biology; chief, Section of Molecular Therapeutics; professor; Horne Professorship; professor of Immunology (joint appointment), University of Texas MD Anderson Cancer Center
Register for the Meningioma Webinar Meningioma webinar recording is
now online

On Tuesday March 1, NBTS co-hosted a meningioma webinar with the Brain Science Foundation. Our guest presenter, Dr. Michael McDermott, a UC San Francisco (UCSF) neurosurgeon, discussed meningioma treatment and research updates followed by a question and answer segment. Presentation slides as well as a recording of the program are now available on our Online Educational Programs page. We will be posting some additional participant questions in our Meningioma forum with responses from a panel of experts including Dr. McDermott, Dr. Elizabeth Claus from Brigham and Women’s Hospital, and Mary Lovely from NBTS and UCSF School of Nursing. We hope that you will continue to visit our forums for further discussion with the brain tumor community.
David Cook - Concert for Hope
David Cook, former American Idol winner, has become a champion for our cause and a regular attendee of the Race for Hope - DC after the loss his brother to a brain tumor in May 2009. This year, David will perform a special concert on Friday, April 29 and ticket sales will benefit the Race. Visit the Race website for the ticket sales link. They are limited so be sure to get them early!
Justin's Quest Final ShotJustin makes his final shot for his Quest
Los Angeles Laker starting center, Pau Gasol, teamed up with 14-year-old Justin Friedlander during NBA All-Star Weekend to help with Justin's Quest, an initiative in which Justin shot a basket for every person diagnosed with a primary brain tumor each year – 63,000 baskets. In the presence of the NBA All-Star East and West teams and thousands of NBA fans, Gasol and Friedlander shot the final three baskets. Read more
Where you can find us this spring
NBTS will be attending the following professional conferences and meetings, representing the brain tumor cause and learning the latest information in research and quality of life:

March: American Association for Cancer Research (AACR)/National Cancer Institute (NCI) Systems Biology Conference; American Association of Neuroscience Nurses Educational Meeting; Blood Brain Barrier Consortium Meeting

April: AACR Annual Meeting; AANS/Congress of Neurological Surgeons (CNS) Annual Meeting

May: Association for Oncology Social Work Annual Meeting; American Brain Coalition-Next Frontier Meeting; SNO Pediatric Neuro-Oncology Basic and Translational Research Conference

For a complete list of conferences we will be attending this year, please visit our website.
Story Corner: Life is Worth ItA Chapter from our Story Corner
In "Life is Worth It," Matt writes: I was diagnosed in May 2006 with an oligoastrocytoma tumor in my left temporal lobe. I have had three surgeries, the first one was to diagnose the tumor that was then removed three weeks later. I lost my ability to speak and read with that surgery. I also lost my peripheral vision on my right side. I had two and a half months of radiation and was put on Temodar chemotherapy. Fifteen months later I had cysts removed from the same area, and it gave me paralysis on my right side. I had to learn how to walk again as well. Since my 2006 and 2007 surgeries, I have really had to come a long way re-learning so many things. Read more
Upcoming community events
Think Love - Benefit Show
March 20, 2011, 3:00 PM
South Lakes High School Little Theater
Reston, Va.
Live music, dance, and theater performances by local students and community professionals to celebrate the life of Cindy Martin and raise brain cancer awareness.
Learn more

Joggin' for the Noggin'
April 16, 2011, 9:00 AM
Tuckahoe Little League Park
Richmond, Va.
Come celebrate the life of Kristin Corrigan, who passed away from a brain tumor in 2007. Now in its fourth year, Joggin' for the Noggin continues to help raise money to find a cure for all brain tumors. Together we can make a difference.
Learn more

Learn how to start your own community event!

NBTS Events update for top fundraisers
New this year! At this year's events, the top fundraisers will be determined by the amount raised as of midnight the Wednesday before the event. You will of course be able to raise funds after this date; they just won't be counted towards your team total when determining top fundraiser announced at the event. The following event has a "top fundraiser" deadline of April 27, 2011:
Button: Donate Now

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Register now for our upcoming spring events!

Wilmington, Del. - April 30
Brain Tumor Walk

Washington, D.C. - May 1
Race for Hope

San Francisco, Calif. - May 7
Brain Tumor Walk

Boston, Mass. - May 15
Brain Tumor Ride

Saratoga Springs, N.Y. - May 15
Team Billy Ride and Walk for Research

Denver, Colo. - June 4
Brain Tumor Walk

New! New York, N.Y. - June 18
Brain Tumor Walk

See a full listing of 2011 events

NBTS Summit Save the Date


Items of Interest

UCLA Eleventh Annual Brain Tumor Conference
On April 15 and 16, join brain tumor survivors, family members, friends, and health care professionals at the conference, hosted by the UCLA Neuro-Oncology Program. This free conference will offer participants the opportunity to hear leading healthcare professionals speak about the latest treatments for brain tumors. Learn more

Have you been reading the "Headquarters" Blog?
Each week the Patient Services team chooses a topic and posts stories, interviews, perspectives, resources, and more on that particular topic. Here are a few highlights from the blog this past month:

Resources: Meningiomas
For the many hundreds of calls that we receive, from patients, families, and friends affected by a meningioma, we have developed a list of some of the most frequently...read more

Recipe: Chicken Chili
This chicken chili recipe is fabulous. I served it to a group of picky eaters and they loved it. Green chilies add some spice, making the flavor not too hot. Please read about the recipe...read more

Q & A: Navigating Financial Resources
My loved one has been diagnosed with a brain tumor. I thought insurance would cover everything, but with the piling medical bills and loss of income, we just can’t keep up. Where do I even begin to look for help...read more

Recent Articles

Brain tumor risk drops with more allergies

Anti-VEGF treatment reduces blood supply and increases tumor cell invasion in glioblastoma

Study indicates cell phones affect brain activity, but implications are unclear

Medulloblastoma model more accurately predicts risk of relapse

More research news

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration
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