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Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Patient Services, Research, and Advocacy and Public Policy programs, as well as the latest research news, and information on NBTS regional events. June 2011
ASCO 2011NBTS at ASCO's 2011 Annual Meeting
Several NBTS staff members recently returned from the American Society of Clinical Oncology 2011 Annual Meeting in Chicago, which included segments important to the brain tumor community. A few items of note include:

- The president of ASCO spoke about the incredible significance of genomics in
his address to attendees. Genome sequencing promises to be an exciting component of the NBTS Mary Catherine Calisto Systems Biology Initiative.

- Plans to overhaul the clinical trial systems to accelerate successful outcomes as a result of a 2010 IOM study.

- Several brain tumor studies presented early findings, including an
NBTS-funded cancer vaccine trial and a new angiogenic drug called cilengitide.
Keeping the ball rolling for research funding
Following Brain Tumor Action Week in May, NBTS volunteer Gina M. represented NBTS at the One Voice Against Cancer Advocacy Day in Washington D.C., where many of the major cancer-related organizations came together to urge Congress to maintain funding for cancer research.

And in June, we're getting local! We hope you will join our advocacy efforts by dropping by the local office of your Members of Congress to leave them with the message that you want them to maintain and even increase funding levels for medical research related to brain tumors. Visit our website to learn more or to sign up to be an advocate.

GET YOUR HEAD IN THE GAME Brain Tumor Awareness Movement

Update from the GET YOUR HEAD IN THE GAME® Movement
Surpasses 500 Fans!
The NBTS GET YOUR HEAD IN THE GAME® Brain Tumor Awareness Movement has been growing tremendously since its launch on April 30. It has surpassed 500 fans on Facebook, and has been introduced to over 6,500 NBTS followers nationwide! Visit and find out how you can take action join the Movement with NBTS.

Katie has her head in the game!
Katie B. certainly has her head in the game! She collected recipes from friends and supporters in the brain tumor community for a cookbook, Bountiful Delights. Katie describes her experiences since her 2007 diagnosis as "a wild ride" in the preface to the book, which is available for $15 (+$3 S/H). Orders can be sent via email, and proceeds go to support the NBTS GET YOUR HEAD IN THE GAME® Brain Tumor Awareness Movement.

2011 event season kicks off
The NBTS 2011 event season got underway at the end of April. Some highlights include:
That's over $4 million raised in two short months! Thanks to everyone involved. It has been so inspiring to see so many people come out to support the brain tumor community. There are links to the photos from each event on the event websites.

We are looking forward to our next events - the New York Brain Tumor Walk on June 18 and the Portland (OR) Brain Tumor Walk on August 20.
Sexuality and Intimacy Podcast
Listen to our new Sexuality and Intimacy recording featuring guest expert Dr. Sueann Mark, Clinical Sexologist, and Associate Professor at the Institute for Advanced Study of Human Sexuality. Dr. Mark answers common questions about changes in sexual health and intimacy following brain tumor diagnosis and treatment. For more information and resources, read the recent blog posts on the topic of sexual health in the NBTS interactive online community. Stay tuned for more interviews with field experts in our brain tumor survivorship series.

Community events update
Upcoming Community Events
Bo Line Boutique Fashion Show
June 17, 2011 Norwell, Massachusetts
Join the Boutique under the stars as they celebrate life, good health, great friends, and individual sense of style! This tent event will feature a very special fashion show with funds benefitting NBTS. Learn more.

Homerun 4 Chris
June 18, 2011
Traverse City, Michigan
Chris' family combined his love of baseball and music and their own passion for running races to come up with Homerun 4 Chris (now in its second year), a 5k running race where you cross home plate as you finish.
Learn more.

5th Annual Eshman Randall Memorial Golf Classic
June 24, 2011
Myersville, Maryland
A day of golf, food and fun to raise awareness and money to benefit brain tumor research and other Frederick County charities. Learn more.

Community Events Highlight
Mets Awareness NightThe New York Mets celebrated Brain Tumor Awareness Night on May 28 and honored members of the New York Brain Tumor Walk committee on the field before the game with the Philadelphia Phillies. The Mets awarded the Spirit Award to Jay Helms, Sarah Whitlock, Scott Kaufman, Dr. Susan Pannullo, Trisha Grasmann, and Gordan Grasmann, and shared information about NBTS and the Walk with everyone at Citi Field over the public address system and the jumbotron.

Learn how to start your own community event!

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Register now for our upcoming events!

New! New York, N.Y. - June 18
Brain Tumor Walk

Portland, Ore. - August 20
Brain Tumor Walk

San Diego, Calif. - Sept. 10
Brain Tumor Walk

Southern California - Sept. 17
Brain Tumor Walk

Boston, Mass. - October 1
Brain Tumor Walk

Silicon Valley, Calif. - October 16
Brain Tumor Ride

See a full listing of 2011 events

NBTS out and about
Some of the upcoming events in which NBTS is participating:

Translational Research Summit
July 28-30
Washington, D.C.

Meningioma (BRAIN) Conference
September 2011
Boston, Mass.

Events NBTS previously attended:

Association of Oncology Social Work
May 4-6

Association of Pediatric Oncology Social Work
May 11-13

American Society of Clinical Oncology
June 2-7

Brain Tumor Epidemiology Consortium
June 4-7

NBTS Summit Save the Date

More details about the 2011 NBTS Summit

Items of Interest

Have you been reading the "Headquarters" Blog?
Each week the Patient Services team chooses a topic and posts stories, interviews, perspectives, resources, and more on that particular topic. Here are a few highlights from the blog this past month:

Q & A: Sharing intimacy when so much has changed
Sexuality and intimacy are a big part of quality of life. As we ask patients and caregivers about sexual relationships after the diagnosis, a common answer that it has changed from what it was to almost nothing. Read more

Resources: Caring for the Caregiver
Caregiving can be extremely rewarding, but also challenging. The cliché is that you must take care of yourself to care for others. However, realistically a caregiver plays various other roles besides being a full time caregiver, and these roles limit the amount of time one has for adequate self-care. Finding a balance is necessary and there are organizations out there to support caregivers. Read more

Malignant Gliomas
The Patient Services team discussed malignant gliomas, one of the most common primary brain tumor diagnoses. Read more

Recent Articles

NOVARTIS : drug Votubia® approved as first medication in Switzerland for SEGA, a benign brain tumor associated with tuberous sclerosis

WHO group says cell phone use might cause brain tumors

Study finds vaccine extends recurrent GBM survival rates by 2 to 3 times

Treatment with OPAXIO(R),Temozolomide and Radiotherapy results in encouraging progression free survival in patients with high grade malignant brain tumors

More research news

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.
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