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Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Research and Public Policy Advocacy programs, as well as the latest research and community news, and information on NBTS regional events. November 2011
A Thanksgiving Message
Thank you for joining with NBTS in the fight against brain tumors. We wish you the happiest of Thanksgivings and hope that one day soon we will all be giving thanks for a cure.
Dr. Yung at the 2011 SummitA peek at the Summit
Take a peek at what happened at the National Brain Tumor Society 2011 Summit in Philadelphia from Nov. 3-6. Learn what took place and check out videos from the four-day event that included the NBTS Annual Meeting, a research symposium (read more about this below), a patient and family program, and the Race for Hope-Philadelphia.
Summit 2011 Research Symposium PanelA meeting of the minds
See what the top minds in brain tumor research had to say when NBTS brought them together for the Research Symposium, "Stepping Up to the Complexity Challenge: The Systems Biology Era of Cancer Research." As part of the NBTS efforts to lead the way toward a systems biology approach, the symposium featured experts from the National Cancer Institute, industry, and academic institutions discussing the importance of the emerging field of systems biology to finding a cure. Read specific examples of how systems biology research is being carried out and watch a video from one of the panel discussions here.
Patient Advocacy starts with you
Yes, patient advocacy starts with you, your family, and your country. An awesome group came together in Philadelphia at the 2011 NBTS Summit and Race for Hope - Philadelphia. They sent at least 200 letters to Congress in two days! All that advocacy surely would have made Benjamin Franklin smile. As the Congressional Supercommittee makes the final push to work out a deficit reduction plan would you take one minute to write to your Members of Congress? Read the latest public policy update to get the background.
Abhijit GuhaIn memory of Dr. Abhijit Guha
National Brain Tumor Society was saddened to learn of the passing of Abhijit Guha, MD, MSc, FRCS, FACS of The Toronto Hospital, University of Toronto. Dr. Guha was a dedicated member of the NBTS Scientific Advisory Council and will be missed by everyone at NBTS. Our thoughts are with his wife, Soma, and his children, Deep and Tia. Read more.
2011 Race For Hope - PhiladelphiaThank you event participants!
An amazing group of people raised more than $4 million dollars by taking part in events across the country in 2011. Many of those events reached new levels of participation and fundraising. In its second year, the Silicon Valley Brain Tumor Ride raised over $130,000, while the Texas brain tumor community turned out for the Dallas-Ft. Worth Brain Tumor Walk to raise more than $200,000. Then, the 2011 events season came to a triumphant close at the Race for Hope - Philadephia, where more than 6,500 supporters raised over $800,000 – and gifts are still coming in. We are deeply grateful for everyone's generosity and support for the fight against brain tumors.
Duane MitchellResearch Profile of Success
Duane Mitchell, MD, PhD, received a grant from the NBTS legacy organization the Brain Tumor Society to advance immunotherapeutic approaches for treating glioblastoma. Findings from this research have resulted in three publications and two patents; led to additional funding support from the NIH and Department of Defense; and have been translated to ongoing clinical trials at the Preston Robert Tisch Brain Tumor Center. Recently NBTS interviewed Dr. Mitchell about his research and where he sees research going in the future.
How can you get your head in the game? Watch and find out!
Get Your Head in the Game Video
Story Corner: KaliA chapter from our Story Corner
Kali lost her mom in August 2010 to a grade 4 glioblastoma. Although she struggled to find answers to the "why?" questions, she wanted to learn as much as she could about her mom's cancer. As a result, she has had the opportunity to continue honoring her mother by supporting brain tumor awareness. Read Kali's story.
Community events update
Upcoming Community Event
Dee and Friends Annual Cruise
October 14 - October 21, 2012

Set sail for Mexico and help the National Brain Tumor Society! Margaret Salmond, That Travel Chick, is organizing a seven-day Mexican Riviera cruise. It might seem early to put on the calendar, but the deposit is only $25 per person until November 29, 2011! Learn more.
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Save the date for our 2012 events!

Phoenix, Ariz. - March 18
Brain Tumor Walk

Wilmington, Del. - April 28
Brain Tumor Walk

San Francisco, Calif. - May 5
Brain Tumor Walk

Washington, D.C. - May 6
Race for Hope - DC

NBTS out and about

Some of the events in which NBTS recently attended:

The Cancer Genome Atlas 1st Annual Scientific Symposium
November 17-18, 2011
National Harbor, Md.

Society for NeuroOncology Scientific Meeting
November 17-20, 2011
Orange County, Calif.

Items of Interest
Have you been reading the "Headquarters" Blog?
Here are a few highlights from the blog this past month:

Inspiration from the Race for Hope
"I met Bailey last Sunday in Philadelphia. She captures both the hope all of us feel as we fund promising brain tumor research and the fear we all feel that the disease is winning. I know that it is not winning as long as we all continue to fight. We do however need to more quickly translate what could be in the lab and clinic to what should be in the patient rooms." Read more.

"We're in it all the way"
"We are all in this together," said Daniel Gallahan, PhD, Deputy Director of the Division of Cancer Biology, National Cancer Institute, at the NBTS Summit Research Symposium systems biology panel discussion. "If we understand fundamental changes [that lead to progress] in one disease, we can extrapolate to other diseases." Read (and watch) more.

"Transforming Tomorrow, Today"
So just what can we do to transform tomorrow, today?

1. Let's advocate.
2. Let's recruit.
3. Let's educate ourselves and the medical community about all that's available to brain tumor patients including what clinical trials are offered.

Read more.

Recent Articles

Valproic acid may prolong survival in glioblastoma

Celldex brain cancer treatment scores EU orphan drug designation

No use of adding chemotherapy in Avastin for glioblastoma

Treatment of cytomegalovirus with NSAID, antivirals reduced medulloblastoma growth

More research news

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National Brain Tumor Society is a nonprofit organization committed to finding a cure for brain tumors. NBTS aggressively drives strategic research, advocates for public policies that meet the needs of the brain tumor community, and provides patient information.
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