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Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Patient Services, Research, and Advocacy and Public Policy programs, as well as the latest research news, and information on NBTS regional events. August 2011
NBTS Annual Report now availableNBTS Annual Report now available
Check out the NBTS Annual Report and find out how together, we are seeing change. The Annual Report highlights what is going on in NBTS programs and initiatives, features fundraising activities, and recognizes donors.
Get the message to Congress with easy-to-use tools
The brain tumor community is speaking loudly to Congress right now – telling them that bio-medical research funding by the NIH should be off the table for budget cuts. Hundreds of brain tumor advocates wrote to their Members of Congress using the new NBTS advocacy action alert and toolkit. It’s not too late to weigh in. Let Congress know how important it is to maintain funding for research to find treatments for brain tumors. Catch the latest update in brain tumor public policy and advocacy including NBTS's recent meeting with the National Cancer Institute.

Computer with NBTS Screen Shot Save the Date:
Malignant Glioma Webinar
Learn the latest treatment and research updates on malignant glioma tumors. Join NBTS for a free webinar on Tuesday, December 6, from 11–12 p.m. PST (1-2 p.m. CST; 2–3 p.m. EST). Dr. Timothy Cloughesy, Director of the University of California, Los Angeles (UCLA) Neuro-Oncology Program, will be our special guest speaker. Please visit our website for more information. Registration will open in October 2011. For more information, email NBTS at

You're invited - 2011 NBTS Summit | Philadelphia, Pa.
Transforming tomorrow, today 2011 Summit Photos
Don't miss the NBTS 2011 Summit in Philadelphia, November 3 - 6! Come celebrate accomplishments, share the latest information and resources, connect with others, and take action to make our voices heard. Space will be limited for some events so sign up at to be notified when the registration information and full agenda are posted in late August.

Have your personal story featured at the Summit!
If you would like to have your personal story featured as part of the Photo Gallery at the Summit, please email your digital photo with a short narrative and/or poem (250 word maximum) to by Friday, September 30. We welcome stories by survivors, caregivers, family members, and friends. Visit our website to learn more about submitting your photo and story to the Gallery.
TulipsTulips Against Tumors is coming!
Summer is almost over, and the tulips are gone, but it's almost time to order more through this year's Tulips Against Tumors Tribute! To be notified when you can buy tulips, visit the Tulips Against Tumors website and fill out the notification form. Ordering capabilities should be available within the next few days. If you bought tulips last year, share your tulips with others by posting photos on the Tulips Against Tumors Facebook page.
Philadelphia PhilliesGET YOUR HEAD IN THE GAME® Brain Tumor Awareness Night with the Philadelphia Phillies
Please join NBTS and the Thomas Jefferson University Department of Neurological Surgery on Wednesday, September 21 at 7:05 p.m. for GET YOUR HEAD IN THE GAME® Brain Tumor Awareness Night at Citizens Bank Park in Philadelphia, Pa., to watch the Phillies host the Washington Nationals. Tickets are $28 each. Visit to purchase tickets.

Community events update
Upcoming Community Events
Oregon Cycling Odyssey
August 22 - 29, 2011
Start and end location: Eugene, Ore.
Be a part of an amazing cycling, hiking and dining event starting and ending in Eugene, Oregon. Stay in four-star lodging and enjoy a celebration dinner at the end of the tour at this adults-only event. Learn more

14th Annual Mike Wengerter Golf Outing
September 17, 2011 | Pataskala, Ohio
This annual event includes a day filled with golf, lunch, dinner, prizes, and fun! Limited spaces available, RSVP by August 28, 2011. Learn more

The Barry Fields and Vince Vigliotti Drive Fore Life Charity Golf Tournament
September 17, 2011 | Leesburger, Va.
Win a 2011 automobile for a Hole in One from Don Beyer Volvo Subaru Kia! The $150 entry fee includes golf, dinner, range balls, cart, and gift bag. Learn more

IREM CCIM Golf TournamentCommunity Event Highlight
The 1st Annual IREM & CCIM Golf Tournament held in Kuna, Idaho on August 9, 2011 raised over $7,000. Golf Chairperson Victoria Johnson has dedicated all proceeds from the silent auction portion of the day to benefit NBTS, totalling $3,200. After the event, Victoria said, "I was extremely excited to support the National Brain Tumor Society and hope and pray there will be a cure soon."

Hear from the research community through
NBTS Scientific Insights
NBTS's Scientific Insights is intended to provide the brain tumor research community with a forum in which to respond to some of today's most intriguing questions. We hope these questions will stimulate conversation and will disseminate information to all those interested. We will post a new question every month, and look forward to your insightful responses. This month's question: what would you suggest to Congress and key federal research agencies to strengthen research on brain tumors?

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Register now for our upcoming events!

Portland, Ore. - Aug. 20
Brain Tumor Walk

San Diego, Calif. - Sept. 10
Brain Tumor Walk

Southern California - Sept. 17
Brain Tumor Walk

Boston, Mass. - Oct. 1
Brain Tumor Walk

Silicon Valley, Calif. - Oct. 16
Brain Tumor Ride

Dallas-Ft. Worth, Texas -
Nov. 5

Brain Tumor Walk

Philadelphia, Pa. - Nov. 6
Race for Hope - Philadelphia

See a full listing of 2011 events

NBTS out and about
Some of the upcoming events in which NBTS is participating:

BioPharm America 2011
Sept. 7-9, 2011
Boston, Mass.

Events NBTS previously attended:

Center of Cancer Systems Biology Workshop
July 25-28 | Boston, Mass.

Translational Research Summit
July 28-30 | Washington, D.C.

Items of Interest

2011 Cancer Rights Conference
Washington, D.C.
September 23, 2011
This free conference from the Cancer Legal Resource Center will provide people coping with cancer – caregivers, advocates, attorneys, and healthcare professionals – with information about cancer-related legal issues. Learn more. (There will be an additional conference in Ann Arbor, Mich. on Oct. 21.)

Have you been reading the "Headquarters" Blog?
Here are a few highlights from the blog this past month:

Q & A: Shunts
Q: What is a shunt, and what are symptoms of needing a shunt? What brain tumor types may require a shunt?
A: A shunt is a tube that diverts the excel fluid from the expanded brain cavity (ventricle) to another part of the body.
Read more

Being candid = awesome
I’ve interacted with many young adult brain tumor survivors. I’ve followed their blogs; I’ve given them guidance and support where I can, and laughed and cried right along with them. Read more

Jillian's story: Make sure you have a strong support system
Jillian, age 29, was a caregiver for her mother who was diagnosed with a pituitary adenoma in 2009. Read more

Recent Articles

Birth defects tied to child brain tumors

Johns Hopkins scientists map genes for common form of brain cancer

Targeting the NG2/CSPG4 Proteoglycan retards tumour growth and angiogenesis in preclinical models of GBM and Melanoma

Intensified Temozolomide fails to hike glioblastoma survival

More research news

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.
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