5 brain surgeries, in a year and a half. The fact that our chilod had to endure so much, is painful. It all still seems unreal.
November 15, 2011, Anthony was diagnosed with having a brain tumor, and hydrocephalus. If i could say one thing about Anthony , it would be that he is a true survivor, and he has fought, and been strong and brave, in ways I never knew possible. He has endured more in the last year and a half, than others do in an entire lifetime. But make no mistake about it....Anthony is the happiest child you could ever meet. He is full of life, and is truly and angel. He thinks with his heart, adn gives much more than he takes. He is the most selfless child I have ever know, and is always concerned with others, and their feelings.
Anthony wanted to have a bakesale, as a fundraiser of his own, and raise money for those children who have cancer of the brain, and are fighting just to make it another day. He proudly raised $63.00, and hand-delivered the money to "his hospital", at A.I. They made a huge deal out of it, took pictures, and made him feel so special. I have no words to describe what this hospital has done for our family. The nurses their go above and beyond to assure our comfort as best they can. There were many nights I had breakdowns, and moments I felt I could barely breathe , seeing my 8-year-old child suffer in such a way. It just isn't fair.
Anthony told told me one day recently, "mommy, you have to hope for the best, but prepare for the worst. Just think, there is kids that have it much "worser" than I do." And then he proceeded to tell me that he had been talking to God, and wanted me to know he wasn't afraid to die, and that God told him he was protecting him. I truly beleive every word.
Yet in still, Anthony amazes us everyday. His outlook is filled with hope, and it is him, that gives us hope, and strength. He is our life, and thinking of the possibility of losing him takes my breathe away. We recently received the devastating news that Anthony's tumor is growing back. Why? How? I just don't understand why this is happening. He will be having another MRI in May to confirm the tumor's growth. Following that, he will most likely have to have the tumor removed, and hope the surgery is successful. He has no idea, and it will remain that way until he has to know. We are having a very difficult time accepting this fact. He has come so far. His hair finally grew back over his incisions. He has been so happy to be back in school, and he is now an orange belt in karate, and playing baseball as well. To have to take all of that away from him, again, is just un-thinkable. But we have to have hope, and faith. It is the only thing that will get us through.
He was so excited to find out about the "walk", and has been keeping a close eye on our teams progress. I told him he could pick the name for our team. He immediately told me that he wanted the name of our team to be "Anthony's Cure". It is amazing to see some of the donations our team has been receiveing. We are truly grateful for each and every single one. The fact is that so much more research needs to be done, and it is all of us who can make that happen, with each and every donation. It was important for us to play our part. We knew we couldn't complain about something, and do nothing about it.
We would love to have all of you walk with us, but we do realize that many of you have prior commitments. Donations are also welcome. Every little it will help us to reach our goal. So spread the word!! If you know anyone who would like to donate to this cause that means so much to us, it would be much appreciated!
National Brain Tumor Society (NBTS) is a putting the search for a cure into overdrive. Progress is being made, but there is so much more to be done. Please support my efforts!
Join us and together we will make a difference.
|Denotes a Team Captain|