Welcome to My Personal Page
My wife Jackie has been fighting Brain Cancer since September of 2015, six weeks after our wedding. After being 'put to sleep' with the initial treatments, unfortunately in the spring of 2017, the tumor started growing again. Jackie has had one craniotomy, three types of Chemo, six weeks of Radiation, two biopsies, CAR-T cell immunotherapy and Checkpoint inhibitor iummunotherapy. Still, the cancer has continued to grow. Her left hand and left leg are not usable so she is reliant on a wheelchair for most of her movements. She is a fighter but more must be done.
Researchers are making progress with many new drugs and treatments but we need more options and we need them faster. More information below on Brain Cancer and making a donation. Please join us!
-Robert & Jackie
Steps to make a donation:
- Click the 'Donate Now' green button in the top right.
- Share this page with others: http://www.braintumorcommunity.org/goto/robertdlentz2018
Team Video:View our TeamJackie video from 2017: https://youtu.be/ZfrEpVq86IM
Why is Brain Cancer different from other Cancers?
There are about 25,000 people diagnosed in the US each year with primary malignant brain tumors. The unique challenges of treating a tumor in the brain require specialized research and tactics:
- The blood-brain barrier means that it is hard or impossible to get some chemotherapies or other drugs to the tumor
- The confined space of the skull means even minor tumor growth can cause problems
- Depending on the location of the tumor, it is impossible to operate on the tumor without causing mental deficits.
Also, there are other unique aspects of brain cancer in that if it starts in the brain, i.e. a primary brain tumor, then it does not (typically) spread to other parts of the body like other cancers tend to do. And, depending on the type of tumor, it can start off as a lower 'grade' and progress to a higher, more aggressive 'grade' over time, so early detection and treatment is important.
There are many unknown aspects of brain tumors that require more research including what causes them in the first place. Most primary brain tumors (95% estimated) are not hereditary or genetic and one of the only known causes is exposure to high radiation dosages like Fukushima. In treatment of brain tumors, doctors are often able to 'put the tumor to sleep' or 'hibernate' it, but it will often start growing again at some later time for unknown reasons. The goal is to extend the amount of time it is 'hibernated' to allow for new research and treatments to become available.
Share Jackie's page with others:
National Brain Tumor Society unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners.
Conquering and curing brain tumors - once and for all.
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