Mimas will walk on May 5th, along with a team that I am forming, to support a cause that is very near and dear to my heart to support my Little Bentlee. Come join me at the 15th Annual NBTS Northwest Brain Tumor Walk at the MODA Center.
As you know, my little granddaughter Bentlee was diagnosed with an inoperable brain tumor on December 11, 2014 which is attached to her optic nerves. After having to abruptly stop her treatment plan after developing a very rare blood disorder ten months into treatment that occurs when the chemotherapy triggers its own immune system to attack its own red blood cells, known as (DIIHA), this caused the body's system to go into multi-organ failure. This literally almost killed our Little Bentlee. Needless to say, this reaction ceased all conventional treatment immediately and stopped all chemotherapy treatments.
Conventional treatment is no longer an option for Bentlee and we must continue to fight to find a cure for brain tumors. Through all of this Bentlee has fought hard and is growing into an amazing 7-year old despite her challenges. It is with the love and support of friends and family like you that Bentlee continues to make progress with nonconventional methods and her tumor remains stable.
Our Little Bentlee is in first grade this year and is growing like a weed. With her strong will to succeed and with the extra assistance she receives through school, Bentlee has made tremendous growth in her learning this year and becoming an active 7-year old despite being challenged each day with visual loss from the brain tumor and the lasting effects it has caused for her. Bentlee's courageous and positive attitude radiates to those all around her. She is 100% girl (princess), enjoys dresses, heels and doing her hair. God forbid that she get dirty. She also enjoys riding her motorcycle, singing, dancing, her bearded dragon Rosie, and her dogs Tinkberbell and Roxie. She has an amazing sense of humor and she can bring a smile to your face even if you are having a bad day.
Thank you to those who are willing to support us in this event. It is caring people like you that help to make the difference.
Tax deductible donations can be made by clicking on the link and donating on our fund raising page.
Today nearly 700,000 people in the United States are living with a primary brain tumor, and about 69,000 others will be diagnosed this year. Brain tumors are often deadly, impact quality of life, and change everything for patients and their loved ones.
An estimated 4,620 children will receive a brain tumor diagnoses this year. The average survival rate for all children with malignant brain tumors is 66%. Did you know that brain tumors are the leading cause of cancer-related deaths in children under 10, and the second leading cause of cancer-related deaths in children under 20?
The most prevalent brain tumor types in children are Astrocytomas, Medulloblastomas, and Ependymomas. Our Little Bentlee has a Pilocytic Astrocytoma.
Team Bentlee thanks you in advance for your support!
National Brain Tumor Society will not rest until a cure exists - but more needs to be done. Please join in my effort!
National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research and advocating for public policies that meet the critical needs of the brain tumor community. Your support ensures this important work will continue.