Welcome to My Personal Page
As you know, my little granddaughter Bentlee was diagnosed with an inoperable brain tumor on December 11, 2014 which is attached to her optic nerves. These last two years have been very difficult, experimental, trying, and somewhat rewarding. Ms. Bentlee started undergoing a 15-month treatment plan which consisted of weekly chemotherapy treatments in an attempt to prevent further vision loss and growth of the her tumor. Bentlee developed every side effect imaginable from rare chemical burns on her body, neuropathy pain in her legs preventing to from walking, excoriating hearing pain in her ears, but the worst and most severe was when she developed a very rare blood disorder ten months into treatment that occurs when the chemotherapy triggers its own immune system to attack its own red blood cells, known as (DIIHA), which causes the system to go into multi-organ failure. This literally almost killed our Little Bentlee and required her to spend several days is ICU where she underwent a plasmapheresis which is a method of removing the blood plasma from the body and separating the cells from the plasma and transferring the cells back into the bloodstream. Needless to say, this reaction ceased all conventional treatment immediately and stopped all chemotherapy treatments. Through all of this Bentlee has fought so hard, and with the love and support of friends and family, continues to make progress with nonconventional methods and her tumor continues to shrink. Her courageous and positive attitude through this all radiates to those all around her and she can bring a smile to your face even if you are having a not so good day.
I have formed a team again this year that will walk for this cause to help look for a cure for brain tumors as it is so important to our family. I have gone from a Committee Member to the Logistic Coordinator for the NBTS Portland Walk and will be in charge of the event and will be quite busy on the day of the walk, but come walk with our team. Thank you to those who are willing to support me and Team Bentlee in this event. It is caring people like you that help to make the difference.
Tax deductible donations can be made by clicking on the link and donating on our fund raising page.
Team Bentlee thanks you in advance for your support!
Tamera, aka Mimas
National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research and advocating for public policies that meet the critical needs of the brain tumor community. Your support ensures this important work will continue.
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