Portland Brain Tumor Walk

Our Little Champion
Our Little Champion

Team Bentlee

 

 

Mimas will walk on August 6th, along with a team that I am forming, to support a cause that is very near and dear to my heart to support my Little Bentlee.

As you know, my little granddaughter Bentlee was diagnosed with an inoperable brain tumor on December 11, 2014 which is attached to her optic nerves. These last two years have been very difficult, experimental, trying, and somewhat rewarding. Ms. Bentlee started undergoing a 15-month treatment plan which consisted of weekly chemotherapy treatments in an attempt to prevent further vision loss and growth of the her tumor. Bentlee developed every side effect imaginable from rare chemical burns on her body, neuropathy pain in her legs preventing to from walking, excoriating hearing pain in her ears, but the worst and most severe was when she developed a very rare blood disorder ten months into treatment that occurs when the chemotherapy triggers its own immune system to attack her own red blood cells, known as (DIIHA). This literally almost killed our Little Bentlee and required her to spend several days is ICU where she underwent a plasmapheresis which is a method of removing the blood plasma from the body and separating the cells from the plasma and transferring the cells back into the bloodstream. Needless to say, this reaction ceased all conventional treatment immediately and stopped all chemotherapy treatments. Through all of this Bentlee has fought so hard, and with the love and support of friends and family, continues to make progress with nonconventional methods and her tumor continues to shrink. Her courageous and positive attitude through this all radiates to those all around her and she can bring a smile to your face even if you are having a not so good day.

Thank you to those who are willing to support us in this event. It is caring people like you that help to make the difference.

Tax deductible donations can be made by clicking on the link and donating on our fund raising page.

Today nearly 700,000 people in the United States are living with a primary brain tumor, and about 69,000 others will be diagnosed this year. Brain tumors are often deadly, impact quality of life, and change everything for patients and their loved ones.

An estimated 4,620 children will receive a brain tumor diagnoses this year. The average survival rate for all children with malignant brain tumors is 66%.  Did you know that brain tumors are the leading cause of cancer-related deaths in children under 10, and the second leading cause of cancer-related deaths in children under 20?

The most prevalent brain tumor types in children are Astrocytomas, Medulloblastomas, and Ependymomas.  Our Little Bentlee has a polycystic Astrocytoma.

Team Bentlee thanks you in advance for your support!

 

National Brain Tumor Society will not rest until a cure exists - but more needs to be done. Please join in my effort!

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National Brain Tumor Society is fiercely committed to finding a cure for brain tumors. They are aggressively driving strategic research and advocating for public policies that meet the critical needs of the brain tumor community. Your support ensures this important work will continue.

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http://events.braintumor.org/portland-brain-tumor-walk/