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I am participating in the 2013 Race for Hope DC in support of my fiance, Paul Rogers.
On Sunday November 20, 2011 Paul suffered a grand mal seizure, and was ultimately diagnosed with a brain tumor in the right frotal lobe of his brain. For one year following his diagnosis he remained under close observation by his neurosurgeon at Johns Hopkins. Every three months he had to have an MRI to monitor the growth of the tumor. The first week of December 2012, Paul received a phone call from Johns Hopkins informing him that his latest MRI had shown growth and that he needed to have surgery. Paul scheduled the surgery for Monday December 17, 2012. Paul's family flew up to DC from Florida and my family came down from New York to be with us through the surgery. Following surgery we learned from Paul's neurosurgeon that the surgery was a complete success. The pathology report we received after surgery was likewise incredible news. We were told that the type of tumor Paul had was a grade II oligodendroglioma with a 1p/19q codeletion. Based on the pathology report, oncology determined that it was not necessary for Paul to undergo radiation or chemotherapy at that time. Paul had relatively few complications following surgery, but did have some minor cognitive deficits that needed to be addressed. To correct those deficits Paul did a month of speech and language therapy. After completing his therapy, Paul is now back to normal. He is back to work full-time, back to working out, running, and socializing just like he was before the surgery.
Hopefully Paul's battle with brain cancer is over, but we must stay vigilant in case it does ever return. Paul is still going to be having periodic MRI's to make sure it doesn't return unnoticed. Paul and I have certainly been through a lot in the last two years and have come a long way, but we are still not out of the woods yet
Paul considers the type of brain tumor he had as "the best of a bad situation." Other people are not as lucky and are faced with much more aggressive and untreatable types of tumors. Paul feels it is his responsibility as a brain cancer survivor to do everything in his power to raise public awareness for brain cancer and conduct fundraising for research into better treatments and a possible cure for brain cancer in the near future, and I wholeheartedly support his efforts. One great way to accomplish both of these goals is through the Race for Hope. I hope many of my friends and family will join me in accomplishing my goal to support Paul, raise awareness for brain cancer, and fundraise for a cure.
The Race for Hope - DC presented by Cassidy Turley raises funds to support innovative research initiatives and provide information for brain tumor patients and their families. This amazing event relies on the dedication and enthusiasm of individuals, families, teams, volunteers, sponsors and donors. Thank you for your support in helping us find a cure for brain tumors!
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