Visit the Race for Hope - DC homepageImage: Race for Hope - DC logo
Image: Race For Hope - DC
Sunday May 4, 2014     Freedom Plaza, Washington, DC
     Forgot Username or Password?

Wear GRAY for Me.

February of 2012 I was having a lot of really bad headaches, I would literally wake up with one as soon as my feet hit the floor and have them all day.  I called them white out headaches because sometimes they were so bad that I wouldn't be able to see, only white.

My wonderful husband, Ryan made me make a doctors appointment, being a busy new Mom, I spent all of my time taking care of my 1 year old!  

I scheduled my first MRI of my brain, then a CAT scan of my brain.  For the record.  THEY ARE VERY VERY VERY LOUD and about 45 minutes long.  Anyone that knows me, knows that I am sensitive to sound, so thus far, this was the most horrible thing ever!

I learned that there was an unknown 'mass' on my brain.  My Mom got me into the Director of Nuerology at Johns Hopkins, he told me that I needed to have it removed.   I was terrified.

I had to have my brain cut open. I had to sign documents that said I could die. I had to think about Noah being without a Mom.  That is where I stopped.  I would be OKAY. I would have my craniotomy, the tumor would be removed entirely and I would heal quickly and be able to take care of Noah very soon thereafter.

About two weeks later, May 2, 2012 I was being rolled into the Operating Room.  I remember the nurses putting a mask over my face, I asked if it was to put me to sleep, they told me "No, this is to get rid of the dirty Baltimore air."  Sweet Dreams Jen...

I woke up in the Nuerology Intensive Care unit, so nauseas, that I could not even turn my head or open my eyes.

I can't remember it perfectly.  But I do know all of the nurses said they were shocked.  They could not believe that I healed so fast.  That I was able to get up and walk around so soon after surgery (a couple days--and slow) but I was up!  I was determined.  One thing that I did.  It sounds silly.  I imagined myself sewing little red hearts into my scar on the back of my head.   A large angry looking scar.  I really think mind over matter (ha!) helped me here.  

 

 

 

Fast forward a week later, (i was told i may be there 2 weeks)-I was in the car and on the way home from the hospital.

My AMAZING husband stayed home with me for almost 8 weeks.  I wasn't able to lift my Son, not in or out of a car seat, not in or out of a crib. I needed help taking care of him all day and night.

This is when Ryan learned the true meaning of a stay at home Mom, and he was shocked, surprised, and oh-so-grateful, of all of the daily duties and tasks that came with being a stay at home Mom.

I have had 5 or 6 MRIs since my craniotomy, they do get easier.  So far, so good.  I am doing well.  

on May 2nd, 2014, I celebrate my (2nd) 'Cranniversary' because it IS A BIG DEAL! 

Since all of this madness, I have learned a lot.  The biggest lesson that I have learned? Most everything isn't a big deal.  :)

 

I am uniting with others to make a difference in the fight against brain tumors. I am passionate about this cause, so I’m taking action and need your help. The National Brain Tumor Society and Accelerate Brain Cancer Cure are making strides for a cure - but more needs to be done. Please join in my effort!


 

© 2012 National Brain Tumor Society and Accelerate Brain Cancer Cure. All rights reserved. National Brain Tumor Society and Accelerate Brain Cancer Cure are each recognized as tax-exempt under Internal Revenue Code section 501(c)(3). Email communications will be sent by both National Brain Tumor Society and Accelerate Brain Cancer Cure. Email communications will be sent by both National Brain Tumor Society and Accelerate Brain Cancer Cure. We value the trust you place in us. Learn how we use and protect your personal information. National Brain Tumor Society privacy policy. Accelerate Brain Cancer Cure privacy policy.. | Print Page