2019 Race For Hope - DC

Nate the Great

At 12 years old, Nate has already been challenged to combat two very rare brain tumors.

Nate was diagnosed with the first of two craniopharygiomas in October of 2007. He was only 16 months old at the time and it was heartbreaking. Three months after the first diagnosis, in January 2008, due to the rate of growth and the type of tumor, Nathan had his first neurosurgery at Children's Hospital in Boston. After nine hours of surgery, the first surgical team, led by Dr. Michael Scott, was able to resect the tumor, however, they were unable to do so without also removing Nathan's pituitary gland. As a result, Nathan has four life threatening medical conditions, which are managed using hormone replacement therapy every twelve hours. After years of working with the medical experts to learn everything possible about how to manage his conditions, he is thriving.

Unfortunately, a spot reappeared on Nathan's brain MRI in August of 2016. The spot was monitored with more frequent MRI's and was determined to be a recurrence of the craniopharygioma. Therefore, in August of 2017, Nathan underwent his second neurosurgery to combat the return of the craniopharygioma. Because he had lost his pituitary gland during the first surgery, and to try to ensure no other hidden cells continued to exist, the leading pituitary brain tumor specialist, Dr. John Jane, Jr., recommended the best treatment would be Gamma Knife Radiation surgery. This surgery was performed by Dr. Jason Sheehan at UVA Health Systems in Charlottesville, VA.

We are so thankful for the medical research that has been done so far, however, great strides are still needed. Again this year, our family has committed to help raise awareness of the medical research still needed to combat brain tumors and their aftermath.

Race for Hope - DC presented by Cushman & Wakefield is a fun, inspirational and family friendly event that supports National Brain Tumor Society and Accelerate Brain Cancer Cure in their quest to find a cure for brain tumors. We believe in their mission and want to be a part of the hope for the future. Will you join us?

There are 700,000 people in the US living with a brain tumor. This year 210,000 more will be diagnosed. We walk for all of these people, their caregivers, family and friends who have been or will be affected by their diagnosis. Join our team and let’s have some fun while we support this great cause!

Please join us by walking with us and/or donating to our team!  We will have a BLAST!

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