What's Happening in the World of Brain Tumor Epidemiology: NBTS Funds Groundbreaking Study The National Brain Tumor Society recently commissioned and sponsored a study by leading brain tumor epidemiologists through the Central Brain Tumor Registry of the United States (CBTRUS) to tell us what they could about the number of brain tumor patients living in the US. More
NBTS Research Grant Winners Receive Huge CIRM Grants Congratulations to the two brain tumor research teams, City of Hope and University of California, San Francisco (UCSF). Both were recently named recipients of the California Institute for Regenerative Medicine’s (CIRM) four-year research grants for $19 million each!. More
NBTS CMV Research Workshop Research has determined that CMV proteins are expressed on glioma cells. NBTS sponsored a CMV (cytomegalovirus) workshop to discuss it’s potential role on the pathogenesis and therapy of GBMs. Researchers are suggesting that CMV is involved in promoting glioma, making them obvious targets for brain tumor therapies. More
Patients, Family & Friends
Clinical Trial Enrolling Patients for Fatigue Study NBTS is committed to the quality of life of brain tumor patients and is supporting a clinical trial studying the effects of the anti-fatigue medication armodavinil in patients with malignant gliomas. Fatigue has been a notable side effect for patients undergoing radiotherapy. While anti-fatigue medication has been beneficial for other cancer patients undergoing radiation no studies have been conducted to investigate its outcome on brain tumor patients. Patients currently being enrolled at the Dana-Farber Cancer Institute and Beth Israel Deaconess Medical Center and trial sites will soon open at the University of Virginia and the University of South California, San Diego.
Exciting Things to Come in the New Year Stay tuned for the expanded interactive and online offerings from NBTS, from clinical trial matching, webinars, and helpful blogs to online caregiver trainings, and more. Coming soon!
Many Voices. United Purpose. Thanks to everyone who participated in our fall events across the country! With record turnouts, together we increased awareness and you raised over $1.5 million to fund vital research and patient services at NBTS! Highlights include:
Have a Chance More than 2,000 people braved inclement weather at New York City’s Battery Park to support NBTS and the Have a Chance Foundation. To date, close to $600,000 has been raised to further the important work of both organizations.
Race for Hope – Philadelphia A record-breaking crowd of 6,000 gathered at the Philadelphia Museum of Art and Mayor Michael A. Nutter urged everyone to inspire hope, take action, and unite to fight brain tumors.
Brain Tumor Walks Amazing efforts were put in across the NBTS Brain Tumor Walks in Portland, San Diego, Southern California, Phoenix, and Dallas-Ft Worth, together raising over $775,000!
How to Help There are many ways you can unite with NBTS in the fight against brain tumors. Your contributions help us to advance the most promising
research for improved treatments faster and provide critical information, support, and services to patients and families coping with a brain tumor diagnosis.
Learn more about ways to support NBTS and the brain tumor community through honoring a loved one, utilizing matching gifts, organizing your own fundraiser, shopping online with iGive, and more.
However you choose to support NBTS, thank you. Together we are making a difference!
News and Events
Save the Date! NBTS Patients and Family Conference Join us in Washington, DC on March 19-20 for an exciting conference featuring presentations from health professionals on topics ranging from tumor types, treatment updates, survivorship, symptom management, quality of life, coping strategies, and more. Patients and families will also receive support and connect with others. More coming soon!
NBTS Fall Events: Donations Still Being Accepted! Check out the exciting results and inspiring efforts of the brain tumor community. Your support is still needed! More
Calling All NBTS Funded Researchers Surveys have been emailed to previous grant recipients requesting updates on NBTS funded projects. Don’t miss this opportunity to showcase your NBTS funded research. Deadline is Dec. 31. Email for more information
Find a Support Group Near You Support groups can play an important role in helping patients and their families adjust to life after a brain tumor diagnosis. The NBTS database allows you to find a support group by zip code or by state. More
No support group in your area? Our Peer Support Network is another great resource to connect with other survivors and caregivers over the phone or by email. More
Research in the News:
First National and Evidence-based Guidelines for Brain Cancer ReleasedMore
Less Brain Swelling Occurs with Multiple Sessions of Stereotactic Radiosurgery for Common Brain TumorMore
Brain Tumors in Childhood Leave a Lasting Mark on Cognition, Life StatusMore
National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.