Synapse eNews is a monthly eNewsletter published by the National Brain Tumor Society to share Patient Services, Research, and Advocacy program updates, news about therapies, and regional events with all members of the brain tumor community.
This spring marks the start of several transformations at NBTS. We are excited to have the Kelly Heinz-Grundner Brain Tumor Foundation (KHG) join us as a subsidiary to help bring greater awareness to the brain tumor cause. Also, our newly launched My.BrainTumorCommunity.Org is offering connection, information, and support among members of the community. And more clarity on our reasons behind pursuing a systems biology research approach is now available in a new Perspectives paper.
This Just In: Kelly Heinz-Grundner Brain Tumor Foundation Joins NBTS The Kelly Heinz-Grundner Brain Tumor Foundation (KHG), headquartered in Wilmington, Delaware, has joined with the National Brain Tumor Society to become a wholly-owned subsidiary. NBTS is excited to have KHG's focus on awareness and education complement our efforts in patient support, research, and advocacy, and to expand their GET YOUR HEAD IN THE GAME® campaign to a nationwide call-to-action for brain tumor awareness. This effort will allow NBTS to help more people find the information, resources, and connection they need in dealing with this devastating disease.Read more.
NBTS Embraces a 'Systems Biology' Approach to Research Brain tumor research, particularly relating to glioblastoma (GBM), has yielded much data in recent years and revealed so many levels of biological complexities that NBTS is pursuing a systems biology approach to brain tumor research. Systems biology focuses on biological systems as a whole, rather than following the traditional avenue of considering individual genes, proteins, parts of an organism, or interaction of a limited number of these. We are optimistic about the positive impact this new approach will bring and offer more details in our newly released Perspectives in Research.
Synergistic Idea Award for Pediatric Brain Tumor Research Review Panel Chosen to serve as a scientific reviewer for the Peer Reviewed Cancer Research Program (PRCRP), Dr. Hurwitz, our Richard B. Ross Chief Scientific Officer, helped determine recipients of the Synergistic Idea Award for Pediatric Brain Tumor Research. The PRCRP program designated $2 million for research of pediatric brain tumors within the field of childhood cancer.Read more.
Patients, Family & Friends
NBTS Launches New Online Brain Tumor Community We are thrilled to announce our new online community for brain tumor patients, families, and friends!
My.BrainTumorCommunity.Org is a place for anyone affected by a brain tumor to connect with others just like them 24 hours a day, 7 days a week. Some features of the community include blogs, discussion forums, profiles, photos, and more. Share this link with your local brain tumor treatment team and community and explore all it has to offer today.
NBTS Clinical Trial Matching Service Working in collaboration with EmergingMed, we have launched a clinical trial matching service. This service will expedite the process of finding available clinical trials given specific diagnosis and treatment regimes.
Get Involved Save the date and register, donate, or volunteer for one of our Spring events!
6th Annual Team Billy Ride and Walk for Research | May 16, 2010 The sixth annual Team Billy Ride and Walk for Research will take place on Sunday, May 16 in downtown Saratoga Springs. Three rides of 50, 25, and 10 miles will begin at 8:30 AM, with a three mile walk through the historic district starting at 9 AM. The rides follow some of the most beautiful sections of Saratoga County, with the 50-mile through the Saratoga National Historic Park.
New this year will be a tour of Serotta Competition Cycling on Saturday, May 15. Serotta will be offering maps of local rides for those coming from out of town. For more information on the weekend activities and Sunday event, please go to the website, www.TeamBilly.org.
Linda Conrad McVeigh Happy Hour | April 11, 2010 This "happy hour" fundraiser will be held on Sunday from 4-8 PM at Flanigan's Boathouse in Wayne, PA. Enjoy beer and wine specials where the funds and tips will all be donated. Participate in a raffle with many different types of prizes ranging from sports tickets to ipods to massages. Learn more about the event or make a donation.
Ways to Help
Sign the Awareness Stamp Petition Help spread the word. Join us in petitioning the Citizens' Stamp Advisory Board to recommend a Brain Tumor Awareness Stamp to the USPS Postmaster General. Sign the petition and tell your friends and family about the cause!
Support NBTS Learn more about ways to support NBTS and the brain tumor community through honoring a loved one, utilizing matching gifts, organizing your own fundraiser, shopping online with iGive, and more.
However you choose to support NBTS, thank you. Together we are making a difference!
News and Events
Start planning for 2010 NBTS Spring Events! Unite to fight brain tumors. Register, donate, or volunteer:
Portland, OR - Aug. 28
San Diego, CA - Sep. 11
Silicon Valley, CA - Sep. 19
Boston, MA - Oct. 2
Southern CA - Oct. 16
Phoenix, AZ - Oct. 23
New York, NY - October
Dallas-Ft. Worth, TX - Nov. 6
Philadelphia, PA - Nov. 7 More
Register as a Virtual Participant! NBTS Races, Rides, and Walks include a participation option for the less athletically inclined or those unable to travel to a site for the day of the event: the Virtual Participant. Registering as a Virtual Participant enables you to raise funds as an individual, join a team, or form a team for the event. Details are available on each event's registration site.
Living with a Brain Tumor Conference in Washington, DC a great success Thank you to all who were able to attend NBTS "Living With a Brain Tumor" conference!
We will be posting the approved speaker presentations on our website. If you have any questions, please contact NBTS Patient Services by phone at 800.934.2873 or email at firstname.lastname@example.org.
The next NBTS "Living With a Brain Tumor" Conference will be in October 2010 in Dallas, TX!
CancerCare Educational Programs CancerCare's free workshop "Brain Tumors: Current Treatments and Hope for the Future" will take place, over the phone or online, on Thursday, April 15, 2010 from 1:30 - 2:30pm ET. Learn more.
National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.