Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on Patient Services, Research and Advocacy programs, the latest research news, as well as information on NBTS regional events.
At the National Brain Tumor Society, we work to maximize every dollar we receive. Charity Navigator has once again recognized our financial health with a four-star rating, the highest it offers. While we take great pride in such a prestigious acknowledgment, we are even more proud that we make the most out of each contribution. Our financial efficiency and accountability allows you to give confidently, knowing that a very high percentage of every dollar we receive is going directly to support research, patient and caregiver services, and advocacy.
Cell phones: Research Results and Usage Advice An eagerly awaited study reported that there was not conclusive evidence of an increased health risk due to cell phone use but was also not able to say that cell phone usage is without any risk. Read more.
NBTS announces 2010 Systems Biology RFA To encourage and engage the brain tumor research community NBTS is proud to announce a new 2010 Systems Biology RFA - Application and Guidelines. The deadline to submit applications is August 1, 2010. On Thursday June 10 at 10 AM PT/1 PM ET, NBTS will hold a webinar to answer any questions you may have. For more information and to download the application packet visit www.braintumor.org/systemsbiology.
Help Advance Brain Tumor Awareness Resolution in Congress On May 4, brain tumor advocates participating in the North American Brain Tumor Coalition's Brain Tumor Action Week went to Capitol Hill and had great success in generating support for the brain tumor cause. We need your help in building on the momentum that they started!
At the urging of brain tumor advocates, Senators Collins (R-ME) and Casey (D-PA) have introduced the Collins-Casey Brain Tumor Awareness Resolution. The Senate will vote this week on the resolution. Please immediately contact your two United States Senators and ask them to support this resolution. Learn more on our website.
In the House, Representatives Jan Schakowsky (D - IL), Jackie Speier (D-CA), Joe Sestak (D-PA), and Mike Castle (R-DE) are introducing a House Resolution to continue recognizing May 2010 as National version of the Brain Tumor Awareness Month.
ACT NOW to guarantee that this resolution has enough co-sponsors to insure introduction and passage. Learn more on our website.
Recap of Brain Tumor Action Week During Brain Tumor Action Week 2010, advocates nationwide joined the North American Brain Tumor Coalition (NABTC) in pressing federal lawmakers for action to advance brain tumor research and care. On May 3, NABTC held a community education meeting featuring guest speakers and advocacy training. On May 4, NBTS staff and board members, along with other advocates went to Capitol Hill for visits with their lawmakers. Two of these advocates, Alan Bemiss of Massachusetts and Liz Harrington of Maine, have graciously shared their experiences with us.
There's still time to get involved! Just because Brain Tumor Awareness Month is coming to a close, does not mean that you can't get involved. Download the NABTC position papers and continue to raise awareness closer to home.
Patients, Family & Friends
Save the Date: Living with a Brain Tumor - A Patient and Family Conference in Dallas, Texas Join us on October 8-9, 2010 for an exciting conference created for patients, survivors, and their families. Learn more about the latest research on the causes, treatments, and coping strategies. Share local and community resources and connect with others in the brain tumor community. Stay tuned for registration information and agenda details. For more information, please visit our website.
Spring Event Season Kicks Off! The NBTS 2010 event season got underway in the beginning of May. Some highlights include:
Students Supporting Brain Tumor Research Students Supporting Brain Tumor Research (SSBTR) is a generous supporter of NBTS. The student-run organization in Arizona was founded in 2002 after three students from the local community died from brain tumors. In 2010, SSBTR organized Walk-a-Thons in Phoenix, Tucson and Flagstaff, raising more than $230,000 between all three events. SSBTR plans to continue to grow, spreading awareness of brain tumors and the need to raise funds to help find a cure.
Ways to Help
Support NBTS Learn more about ways to support NBTS and the brain tumor community through honoring a loved one, utilizing matching gifts, organizing your own fundraiser, shopping online with iGive, and more.
However you choose to support NBTS, thank you. Together we are making a difference!
Brain Tumor Awareness Day with the Oakland A's on Saturday, July 24 - Get your tickets today! For questions or information about Corporate Packages, please contact Adam by email or at 510.563.2350.
Midwest Brain Tumor Conference NBTS is participating with the Brain Tumor Center at the University of Cincinnati for a free educational event for patients, caregivers, and family members. The 2010 Midwest Regional Brain Tumor Conference will take place on June 26, 2010 in Cincinnati, OH. The deadline to pre-register is June 22, 2010. For more information, please visit our website.
Survivorship care planning program benefits survivors of all types of cancer Cancer patients and doctors are finally getting on the same page about cancer survivorship, thanks to a free new tool that can benefit anyone who has been diagnosed with cancer. Read more.
NBTS out and about Some of the upcoming events in which NBTS is participating:
American Society for Clinical Oncology
June 4-8, 2010 Chicago, IL (Look for the NBTS booth!)
International Symposium on Pediatric Neuro-Oncology Vienna, Austria
June 20-23, 2010
National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration