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Synapse eNews header
Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on Patient Services, Research, and Advocacy programs, the latest research news, as well as information on NBTS regional events. July 2010
Mark ColeWhat can NBTS and other organizations, health professionals, and the broader brain tumor community do to improve brain tumor patients' quality of life as they journey with their disease? In September, we will ask this question of leaders in clinical care and research at a workshop in San Francisco. NBTS will convene over 20 leaders from the US and abroad to begin a process that we hope will lead to enhancement of NBTS's services, and also create a roadmap for the broader community as we work together to improve quality of life for brain tumor patients.

This is an important opportunity and we are thrilled not only with the chance to bring these distinguished leaders together, but with their enthusiastic responses. We will publish the results of the workshop in the fall and look forward to a broader conversation with brain tumor patients and caregivers on this important issue in the coming months.

Annual Meeting Save the Date
Research
NBTS Mini-Symposium - Developmental Neurobiology and Pediatric Brain Tumors
On May 15, NBTS and the Brain Tumor Foundation of Canada (BTFC) hosted a mini-symposium at the 2010 Canadian Neuro-Oncology Meeting on developmental neurobiology and pediatric brain tumors. The mini-symposium was the first step in specifying the issues involved in a developmental neurobiology research grant initiative. Next, NBTS will convene a working meeting of advisors in order to formulate the details of a Request for Applications (RFA) for research grant awards in this critical area of research. Read more about the mini-symposium.

NCI welcomes new Director
N. Paul TonThat, NBTS Executive Director, was in Washington, DC, on July 12 for a Town Hall Meeting with the new Director of the National Cancer Institute (NCI), Dr. Harold Varmus. A former director of the National Institutes of Health and president of Memorial Sloan-Kettering Cancer Center, Dr. Varmus spoke of a number of principles that NBTS embraces: the significance of evidence-based research; the need to make improvements in the clinical trial system; the value of promoting openness and sharing when it comes to data, publications, and scientific materials; and the important role advocacy plays in cancer research. NBTS welcomes Dr. Varmus and looks forward to working with him to improve the lives of those affected by cancer. "Dr. Varmus has a distinguished career as a researcher and leader," said TonThat. "We are eager to work with him and look forward to a time of great progress in the fight against brain tumors during his tenure at NCI."

Systems biology webinar now available online
NBTS invited researchers to participate in a webinar to discuss the systems biology approach as it relates to the 2010 Systems Biology Request for Applications. View a recording of the webinar.
Patients, Family & Friends
Registration is open! "Living With a Brain Tumor - A Patient and Family Conference"
Join us on October 8-9, 2010, in Dallas-Fort Worth, Texas for an exciting conference created for patients, survivors, and their families. This special event will feature presentations from physicians, nurses, social workers, caregivers, survivors, and more. We will cover topics such as treatment updates, survivorship, quality of life, pediatric tumors, late effects, and caregiving. Register online today!

National Brain Tumor Society partners with CaringBridge®
NBTS is proud to announce a new partnership with CaringBridge, a charitable nonprofit organization providing free, private websites that connect families and friends during a serious health event, care, and recovery. A CaringBridge website gives people facing a health journey a place to provide updates, post photos, and receive messages of hope and encouragement in a guestbook. To learn more, please visit www.caringbridge.org/braintumor.

Recap of the Midwest Regional Brain Tumor Conference
The Midwest Brain Tumor Conference, held on June 26, had more than 250 participants from five different states, and 10 exhibitors. NBTS presented on "Financial and Emotional Resources for Patients and Families" and co-facilitated the "Living with a Brain Tumor" breakout session that had over 60 participants. Visit the University of Cincinnati Neuroscience Institute website to learn more about what was presented at this year's conference and to watch video presentations from the 2009 conference.
Community Events
All over the country, people whose lives have been affected by brain tumors are organizing events to support NBTS's work.

In addition to raising much-needed funds for NBTS's programs' local events have the significant benefit of raising awareness about brain tumors. Creating an event can be a fun and meaningful project for friends and family, as well as an engaging way to reach out to new people. Here are a few of events that have already taken place this summer:
HomeRUN4Chris Volunteers
HomeRun4Chris
Held on Saturday, June 26, HomeRUN 4 Chris, a 5K where finishers ran across home plate, was a great success! Seventy-eight people participated in the event, organized by the Ruble family in memory of their brother, Chris. The event raised almost $2,000.

Sully Station Swim-a-thonSully Station Swim-a-Thon
The first-ever Sully Station Swim-a-Thon to drown brain cancer took place on July 7, in Centreville, Va. Adults and children as young as 4 swam over 7,200 laps and raised $5,000!

Ways to Help
Support NBTS
Learn more about ways to support NBTS and the brain tumor community by honoring a loved one, utilizing matching gifts, organizing your own fundraiser, shopping online with iGive, and more.

However you choose to support NBTS, thank you. Together we are making a difference!
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News and Events

Join us in the fight against brain tumors.
Portland, OR - Aug. 28
Brain Tumor Walk
San Diego, CA - Sept. 11
Brain Tumor Walk
New! Silicon Valley, CA - Sept. 19
Brain Tumor Ride
New! Boston, MA - Oct. 2
Brain Tumor Walk
Southern CA - Oct. 16
Brain Tumor Walk

Other upcoming 2010 NBTS events
Phoenix, AZ -  Oct. 23
Dallas-Ft. Worth, TX - Nov. 6
Philadelphia, PA - Nov. 7


Get involved
Register, donate, or volunteer for one of our inspirational Fall events listed above! Nothing in your area? Check out other locations for upcoming community events or start an event of your own. Here are a couple coming up:

Skate Against Brain Tumors
August 1, 2010
Ice Works Skating Complex
Aston, PA

11th Annual Tom Arnold Memorial Golf Outing
August 14, 2010
Dragon Ranch Golf Course
Elyria, OH

Tumors Suck Paintball Benefit
August 14, 2010
Hell Survivors Paintball Playfield
Pinckney, MI


Dana-Farber/Brigham and Women's Cancer Center "Living with Brain Tumors" Meeting
On September 11, 2010, join doctors, nurses, and social workers from the Center for Neuro-Oncology at the Dana-Farber/Brigham and Women's Cancer Center for an educational patient and family-centered program Learn more.

Research in the news:
Neural Stem Cells Attack Glioblastoma Cells
Astrocytes Affect Brain's Information Signaling, Research Finds

Sign the Awareness Stamp Petition

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration
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