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Synapse eNews header
 
Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Patient Services, Research, and Advocacy and Public Policy programs, as well as the latest research news, and information on NBTS regional events. April 2011
NBTS welcomes David AronsNBTS welcomes David Arons
NBTS is pleased to welcome David Arons as the new Director of Public Policy. Mr. Arons will represent NBTS in Washington, DC, where he will work with policymakers, members of Congress and other organizations to achieve NBTS policy priorities. He will also monitor the public policy environment, analyzing and reporting on events and issues of importance to the brain tumor community. Please join us in welcoming Mr. Arons!
May is Brain Tumor Awareness MonthMay is Brain Tumor Awareness Month
Help NBTS kick off Brain Tumor Awareness Month (BTAM) with the Race for Hope - DC and the Bay Area Brain Tumor Walk, and visits to Capitol Hill as part of Brain Tumor Action Week, May 1-7. On May 2 in Washington, DC, we invite you to an education day, which will include training for advocacy visits to Congress on May 3 to educate advocates on brain tumor research and care. Learn more about ways to help and to register for Brain Tumor Action Week Capitol Hill visits.
NBTS research funding highlights
Since 1992, NBTS and its legacy organizations have supported brain tumor research by directly funding grants and collaborating with other funding organizations. To measure the contribution of this research funding, NBTS performed a quantitative analysis of the more than 400 peer-reviewed scientific published articles that resulted from NBTS-supported brain tumor research studies. In addition, NBTS looked at other indicators reflecting the contribution that research is making on the development of new treatments for brain tumors. Together, these findings were put into a Summary of NBTS's Reseach Funding (PDF).
Tulips Spring 2011Spring is here and so are the tulips
In some parts of the country, the tulips that were planted last fall during the Tulips Against Tumors fundraiser are already in full bloom. If you bought tulips last year, share your tulips with others by posting photos on the Tulips Against Tumors Facebook page. If you want to be notified of when you can buy tulips this year, visit the Tulips Against Tumors website and fill out the notification form.
Planning to help NBTS
NBTS created the Living Legacy Society to recognize donors who have chosen to provide support for NBTS and its programs through planned or deferred gifts, including bequests, charitable trusts, gift annuities, and other estate planning methods. Like NBTS, members of the Living Legacy Society are dedicated to funding transformative research; empowering individuals with information, support, and connections with others; and advocating for all those affected by brain tumors. Visit the NBTS website to download the informational booklet or learn more.
Tevolution - HoneyTwist. Sip. Give.
NBTS has partnered with newly launched Purpose Beverages, Inc. as one of the four charities that will benefit from the sale of its Tēvolution products. All you need to do is TWIST the cap, take a SIP, and Tēvolution will GIVE 25 cents from your purchase to a charity, one of which is NBTS. You can either send a text message to the number on the cap or visit www.trackyourimpact.com to see where the 25 cents went! Learn more about Tēvolution.

Community events update
Mets Brain Tumor Awareness Night
May 28, 2011
Join us for a New York Mets and Philadelphia Phillies game to raise brain tumor awareness! A portion of each ticket sold will benefit the NBTS when purchased through the following link: www.mets.com/braintumor

Fourth Annual Nick Gonzales Charity Golf Tournament
April 29, 2011
Have fun with friends and support brain tumor research! This event will be held at the Prestonwood Country Club in Dallas, Texas. After golf, both golfers and non-golfers alike can enjoy an upscale dinner and other activities. Learn more about this event.

Learn how to start your own community event!

Creative Community Event highlights
Highland YardHighland Yards
The owners of Highland Yard, a horse racing stable in the San Francisco Bay Area, have started donating 10% of their horses' winnings to NBTS. So far the horses have won almost $6,000 for NBTS!

 

Cut 'em for Cancer
Here's a fundraising idea you may not have thought of - cut your hair! Henry Schwartz, who lost his father to a brain tumor, is cutting off his dreadlocks for brain tumors. With a $100 donation, Henry will cut off one of his 52 dreadlocks. He has already raised $3,400 for NBTS.

Visit the NBTS website to learn about other creative ways to raise money.

NBTS Events update for top fundraisers
New this year! At this year's events, the top fundraisers will be determined by the amount raised as of midnight the Wednesday before the event. You will of course be able to raise funds after this date; they just won't be counted towards your team total when determining the top fundraiser announced at the event. The following events have upcoming "top fundraiser" deadlines:
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Register now for our upcoming events!

Wilmington, Del. - April 30
Brain Tumor Walk

Washington, D.C. - May 1
Race for Hope

San Francisco, Calif. - May 7
Brain Tumor Walk

Boston, Mass. - May 15
Brain Tumor Ride

Saratoga Springs, N.Y. - May 15
Team Billy Ride and Walk for Research

Denver, Colo. - June 4
Brain Tumor Walk

New! New York, N.Y. - June 18
Brain Tumor Walk

Portland, Ore. - August 20
Brain Tumor Walk

See a full listing of 2011 events

NBTS Summit Save the Date


Items of Interest

Together in Hope: A conference for brain tumor patients and families
Join NBTS and the University of Texas MD Anderson Cancer Center on May 20-22, for an exciting conference created for patients, survivors, and their families. View the full conference agenda and registration information (PDF).

AngioChem Award Presentation

NBTS presents AngioChem with the Innovation Award
(l-r) NBTS Executive Director, N. Paul TonThat; NBTS Board Chair, Jeff Kolodin; and AngioChem President and CEO, Dr. Jean-Paul Castaigne (Read full story)

Have you been reading the "Headquarters" Blog?
Each week the Patient Services team chooses a topic and posts stories, interviews, perspectives, resources, and more on that particular topic. Here are a few highlights from the blog this past month:

Speak up, speak out, be heard!
In just a few weeks, we are planning to gather patients, family members, and health professionals of the brain tumor community to meet with members of congress and their staff to bring awareness and advocate for changes. We hope you can join us... Read more

Neuroscience supports the recovery model
Recently, Patient Services had the pleasure of talking with Dr. Jill Bolte Taylor, a Harvard-trained and published neuroanatomist who experienced a severe hemorrhage in the left hemisphere of her brain in 1996. After that moment, she could not walk, talk, read, write, or recall any of her life... Read more

Music and MRIs
One great way to relax is to just put on some great music and follow the sounds. Some songs have such powerful effects that they can instantly transform your mood. Listening to music can help calm the mind and ease stress that may occur before or after an MRI scan... Read more

Recent Articles

Personalized dendritic cell vaccine increases survival in patients with deadly brain cancer

Research targets way to stop brain tumor cell invasion

Key mutations act cooperatively to fuel aggressive brain tumor

Cancer treatment: Novocure's brain tumor device goes before FDA panel

More research news

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration
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