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Synapse eNews header
 
Synapse eNews is published monthly by NBTS for all members of the brain tumor community. It includes updates on our Patient Services, Research, and Advocacy and Public Policy programs, as well as the latest research news, and information on NBTS regional events. May 2011
GET YOUR HEAD IN THE GAME Brain Tumor Awareness MovementNational brain tumor awareness movement launches
Just in time for Brain Tumor Awareness Month, the GET YOUR HEAD IN THE GAME Brain Tumor Awareness Movement, an initiative of the National Brain Tumor Society, made its national debut at the Fourth Annual GET YOUR HEAD IN THE GAME Brain Tumor Awareness Walk on Saturday, April 30. The Movement features brain tumor survivors as spokespeople, and is designed to help both the general public and medical professionals learn the facts about brain tumors and take action in the fight against the disease. Learn more about how to Get Your Head in the Game!
Brain Tumor Action WeekA successful Brain Tumor Action Week
Andrea of Idaho said it best: "Reducing funding for medical research on brain tumors is not acceptable." And she said it to her U.S. Senator. Andrea and many other dedicated members of the brain tumor community took this message to Capitol Hill on Tuesday, May 3, as part of Brain Tumor Action Week. Although Congress was facing many issues coming back from Easter recess, brain tumor patients and caregivers told Congress that it should not retreat on medical research funding. Read more.
NBTS Summit Save the DateSave the Date: NBTS 2011 Summit
NBTS's 2011 Summit in Philadelphia, Pa. will bring the entire brain tumor community together for four days of educational and inspirational events.
 
• Get inspired at our Annual Meeting.
• Connect with others at our Patient and Family Conference Reception, and then learn about the latest in brain tumor treatments at our Patient and Family Conference.
• Make a difference in the fight against brain tumors at our Race for Hope - Philadelphia.

 
Learn more
Give art and support the fight against brain tumors
Art in Giving offers organizations and individuals a meaningful way to show their appreciation to employees, board members, clients, guest speakers, and friends while benefiting NBTS at the same time. Fifty percent of the proceeds of the sale of pieces of art through Art in Giving will go to the Rachel Molly Markoff Foundation, a longtime supporter of NBTS.
Community events update
Mets Brain Tumor Awareness Night
May 28, 2011
New York, N.Y.
Join us for a New York Mets and Philadelphia Phillies game to raise brain tumor awareness! A portion of each ticket sold will benefit NBTS when purchased through the following link:
www.mets.com/braintumor
 
Mary Kline Classic Basketball Game
May 28, 2011
Pennington, N.J.
Be a part of the Mary Kline Classic, an elite 24-man basketball game featuring high school talent from all over the Mid-Atlantic region that honors the mother of organizer Alex Kline.
Learn more.
 
No Brainer Benefit Concert
June 5, 2011
Philadelphia, Pa.
The 6th Annual Race For Hope - Philadelphia is coming up this fall, but the race to find treatments for brain tumors continues all year round. On the afternoon of June 5, come to McFadden's Restaurant and Saloon in Philadelphia for the No Brainer Benefit Concert with Avi & Dov Benjamin Wisnia. All proceeds from the all ages event will benefit the National Brain Tumor Society through the Race For Hope.
Learn more.
 
Learn how to start your own community event!
Story Corner: StacyA chapter from our Story Corner
In "A Survival Story," Stacy writes: "I suffered headaches for at least 10 years. I was 39 years old at the time, and a mother of three young children. My youngest was two years old. I went for tests to figure out why I was getting headaches. Finally, a CAT scan, an MRI, and then the answer. It was determined at Brigham and Women's hospital in Boston, that I had a tumor on the left side of my brain..." read more.
NBTS Events update for top fundraisers
New this year! At this year's events, the top fundraisers will be determined by the amount raised as of midnight the Wednesday before the event. You will of course be able to raise funds after this date; they just won't be counted towards your team total when determining the top fundraiser announced at the event. The following events have upcoming "top fundraiser" deadlines:
Button: Donate Now

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Register now for our upcoming events!

Denver, Colo. - June 4
Brain Tumor Walk

New! New York, N.Y. - June 18
Brain Tumor Walk

Portland, Ore. - August 20
Brain Tumor Walk

San Diego, Calif. - Sept. 10
Brain Tumor Walk

Southern California - Sept. 17
Brain Tumor Walk

Boston, Mass. - October 1
Brain Tumor Walk

See a full listing of 2011 events

May is Brain Tumor Awareness Month

Items of Interest

2011 Cancer Rights Conference - Chicago
June 24, 2011
This free conference from the Cancer Legal Resource Center will provide people coping with cancer – caregivers, advocates, attorneys, and healthcare professionals – with information about cancer-related legal issues. Learn more. (There will be additional conferences on September 23 in Washington, DC, and in Ann Arbor, Mich. on October 21.)

Have you been reading the "Headquarters" Blog?
Each week the Patient Services team chooses a topic and posts stories, interviews, perspectives, resources, and more on that particular topic. Here are a few highlights from the blog this past month:

Live from D.C. - it's NBTS!
During the first week of May, we kicked off Brain Tumor Action Week with the Race for Hope, with over 10,000 participants and almost $2 million raised and counting! Tamar Sekayan had the great privilege to participate in the run/walk again this year, and wanted to share what the experience was like...read more

Q & A: What's happening with brain tumor awareness?
During Brain Tumor Awareness Week, Mary Lovely had the opportunity to have dinner with two individuals devoted to brain tumor awareness. Chris Grundner, the originator of GET YOUR HEAD IN THE GAME®, and Dellann Elliott, of the Chris Elliott Fund, met to talk about brain tumor awareness. They both lost their spouses to brain tumors and have made a commitment to help people understand more about brain tumors...read more

Recap: Your Stories
Over the past few weeks, we have featured stories directly from survivors and caregivers of the brain tumor community. Each story reflects a different experience and connection to brain tumors, but at the core, there are many similarities. We would like to take this day to revisit their stories in case you missed them earlier. We hope you enjoy reading them and keep an eye out for more stories to come every week!...read more

Recent Articles

Minimizing side effects from chemoradiation could help brain cancer patients live longer

New brain tumor vaccine successful in early trials

FDA approves the NovoCure Ltd.'s NovoTTF-100A system for the treatment of patients with recurrent GBM brain tumors

Researchers identify key players in cancer cells' survival kit

More research news

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National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration
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